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WPI expects to start XMRV study (with XMRV testing) in early March 2010

Discussion in 'Active Clinical Studies' started by leelaplay, Feb 21, 2010.

  1. leelaplay

    leelaplay member

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    extract from Dr Cheney and Dr Mikovits Feb 20 2010 - transcribed by Garcia

    Part 2 [10mins to 20mins], between Kim and Lilly.

    Make sure you've applied to the WPI website if you're interested in participating!
     
  2. Frickly

    Frickly Senior Member

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    Texas
    Thanks Islandfinn, I do hope I can be involved in the study. Do you know if autism was discussed and what the status is on autism/xmrv studies? I would love to get my son involved in that.
     
  3. Kati

    Kati Patient in training

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    Frickly I am not sure if she discussed autism in the talk yesterday but the text from IF implies different diseases especially autism- why don't you register him too?
     
  4. creekfeet

    creekfeet Sockfeet

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    Eastern High Sierra
    Ah, thanks very much for the transcribed extract, and that's a great idea: I understand that even for those who can hear it the discussion is difficult to understand so maybe more folks can transcribe just the most pertinent and understandable parts.

    Hoping we ALL get to take part in the study!
     
  5. leelaplay

    leelaplay member

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    Hi Frickly,

    Me too - I want to be in the study sooooo badly.

    I wasn't able to listen to or read the Cheney/Mikovits web talk. I just saw the bit of transcription that Garcia posted and this jumped out at me. I wanted to make sure that everyone knew about the upcoming study & got their applications in if they wanted a chance to participate.

    In this excerpt, she does say
    and WPI has referred to autism before, so I hope so. Maybe something more was said in the rest of the talk - you could check the transcripts here. Did you register your son seperately and mention him in your application? If I were in your shoes, I think I'd register us both separately + emphasize everywhere possible that what the other has, and if there are any other family members with possibly-related diseases, as well.
     
  6. natasa778

    natasa778 Senior Member

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  7. Frickly

    Frickly Senior Member

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    Thanks Natasa! This is excellent news. I just registered my son on WPI and remarked that I was his mother and had CFS. If they call me then I wonder if I can get my identical twin sister in on the study. People love to study twins! :)

    Edited to add: I just started a new thread under "Media Events, talks" as I thought the conference deserved a thread of it's own.

    Thanks Natasa,
     
  8. SeaShel

    SeaShel Senior Member

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    I told a friend last night that I feel like Arnold Horshak in the "Welcome Back Kotter" tv show.

    Bouncing around in my chair, waving my arm wildly in the air - Horshak had his own weird noise he made, but I'm just screeching "pick me pick me pick me".

    I've never ever wanted my blood drawn so badly or been so willing to try whatever allopathic med they want me to try. In Dr Judy I trust!

    :-D

    Shelley
     

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