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WPI ethics...

Discussion in 'General ME/CFS News' started by Veritas Aequitas, Feb 28, 2010.

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  1. oerganix

    oerganix Senior Member

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    So, now this is about Harvey Whittmore?
  2. Lily

    Lily *Believe*

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    Veritas Aequitas = truth is justice

    How can you be so sure of your claims? What is your motivation?
  3. oerganix

    oerganix Senior Member

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    Veritas, if you really want to "follow the money", suggest you check out this thread: http://forums.aboutmecfs.org/showthread.php?3371-Expose-UNUM-by-BBC-Scotland&p=51972#post51972

    Unum is the giant insurance company that operates in UK and US and has funded much of Simon Wesseley's assault on ME as a physical illness and on ME patients, thus creating a potential conflict of interest in every paper he puts his name on. Like the first UK study to try to refute the WPI study.

    In the meantime, don't keep us in suspense. Who owns the patent for the reagents WPI used?

    And what's the cure the Harvey Whittemore could have bought for his daughter years ago?
  4. kat0465

    kat0465 Senior Member

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    Just a thought Veritas, but maybe it's alll the other peple that are doing the testing that are not doing the right kind of test for a reason. maybe thier On big Pharmas side,if you can make that statement about wpi and the whittemores, you might want to look at the other side of the coin.you know if this is for real( xmrv) theres gonna be some throat cutting to try & patent a reliable test not to mention a drug.so which side is being shady???
    I Can't Imagine a parent not wanting thier child to be well, and what purpose would it serve them to Fake an XMRV test.Thier billionairs, so it's not for the Money.
    If what you say is true, Yes they should hae been upfront about thier positions at WPI and VIP dx, that makes no sense to me.I will continue to be hopeful till they prove it without a doubt that this isnt a virus.
  5. Wayne

    Wayne Senior Member

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    Sheer Lunacy

    Sounds like sheer lunacy to me (insulting lunacy no less). Have you considered going over to the ProHealth board? Some of them love this kind of stuff. Over there, they'll do just about anything to tear somebody down; and love using some of the most nonsensical logic in the process.
  6. Lily

    Lily *Believe*

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    Wayne, lol, I should have thought of that!
  7. kat0465

    kat0465 Senior Member

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    not being Snotty, but i dont think anyone here is following blindly like sheep! yes were all excited, i too have been sick about 20 years now, my 20's and30's are shot to hell, and now in my 40's im on he downhill slide. but i havent given up
    i still go to my dr. and stilll do countless exhausting hours on this damn computer, desperately looking for something to make me well.
    i dont just look at WPI, XMRV and i think we all do that.
    it's just one more piece of the Puzzle, that we will have to see if it fits. Promising drugs are swept under the rug every day, if we get well, they dont make $$$ i agree with the post on here 99 out of 100 will gut you for a dollar!!
    i'd trust a person with a sick child, who is trying desperately to find a cure. before i would trust any drug co. and i think the docs at WPI really speak for them selves, they work exhaustng hours to try & help us. and i bet thier sure not rich from doing it.
  8. dannybex

    dannybex Senior Member

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    Flipping your argument around, are you actually suggesting they purposely kept their daughter ill so they could make more money down the road? :confused:

    Andrea became so ill after her vaccinations that she lost three organs. Even if some people have recovered (which is very rare), do you actually believe they haven't tried everything they could to help their own daughter?

    I don't get it.

    d.
  9. anne

    anne Guest

    I think we've heard this one before here....
  10. dannybex

    dannybex Senior Member

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    Excellent Wayne.
  11. dannybex

    dannybex Senior Member

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    Good one...or two! :)
  12. kurt

    kurt Senior Member

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    USA.Earth
    MODERATOR COMMENT - PLEASE do not post insults, even if you believe they are deserved. Everyone has the right to speak their mind here, even someone posting an unpopular view. Disagree with the points being made and state your evidence only, no name calling, etc. Thanks.
  13. julius

    julius Watchoo lookin' at?

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    Got it. I just couldn't help myself. :innocent1:

    I think it would also be appropriate for Veritas to be informed of the forum rules by a moderator. He has broken several of them in this thread.

    I don't mean this to be rude to you Kurt. For the record I have always appreciated your moderating style, and your impartial posts on all subjects.

    And I was expecting to get modded on my comments here, it just seemed too funny to pass up.
  14. Wayne

    Wayne Senior Member

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    No Reprimand Necessary

    With all due respect Kurt, I don't believe I posted any personal insults. Nor did I call this poster a name. I commented on his comments. He's the one who insultingly called us "sheeple". Where's his/her reprimand?
  15. cfs since 1998

    cfs since 1998 *****

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    The posts you quoted were hardly personal insults, but calling us sheeple sure is! Sounds like a double standard to me.
  16. dannybex

    dannybex Senior Member

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    That's what I took these comments as...just joking around...not personal insults or attacks.
  17. kurt

    kurt Senior Member

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    OK, I totally missed the sheeple comment being an insult. So now I feel duly reprimanded :eek::eek::eek:

    MODERATOR COMMENT- Veritas please read the forum rules. There were some insults in your remarks and that is not allowed on this forum.
  18. Wayne

    Wayne Senior Member

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    Unreprimanded

    Hey Kurt,

    I don't think any of us were trying to reprimand you. If you felt that way, please consider yourself "unreprimanded". :Retro smile::Retro wink:

    I'm off to bed. Hope everybody has a good night.

    Wayne
  19. Marco

    Marco Old blackguard

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    Just a little anecdote to share with you.

    I've been living in France for 4 years now and have seen my local GP exactly three times. The reason being is that I've had 20 years of dealing with GPs in the UK and with only frustration as a result. Secondly the cliche is that the French are the world's biggest pill poppers and French GPs just love to dish out drugs. However I needed to inform my GP of my illness as he is my primary (only) medical practitioner.

    The first time I saw him, I introduced myself and handed him a summary of my symptoms over the years. He read them and told me that in France, they don't believe in 'this illness' but suggested I should try antidepressants -just on the off chance. I agreed (not good to be seen refusing treatment) but told him of my reservations as I wasn't depressed and had problems with prescription drugs. A bad start and I assumed that I was dealing with the usual medical bureacrat. Second visit I gave him a copy of the WPI Science paper which at least he agreed to read. I hadn't picked up the prescription for antidepressants and told him so. He didn't seem too upset by this.

    Third visit he had printed off a paper for me (in French) on Fibromyalgia and what the paper termed 'idiopathic fatigue syndrome'. I tried to explain that FM wasn't my problem. He was very adamant that I should read his paper though as it was 'completely independent of any drug company bias'. I read it and it was a meta analysis of all the commonly used pharmaceutical treatments for FM, excluding any results of studies funded by pharma companies. The results were enlightening. No compound gave results significantly better than placebo and once side effects were considered, none were recommended. The recommended treatment was that patients should try to live within their limits - in other words pacing. In return I gave him a French copy of the Canadian Consensus Document which impressed him but he was still concerned about pharma input into it. The doc then asked if there was anything else he could prescribe; When I declined he agreed saying that my body had enough to cope with without adding in drugs.

    My French bureacrat GP turns out to be an anti-Pharma radical. Which is great - shows he has an open mind, BUT :

    Either his English or my French is going to have to improve a lot before I can explain to him that in the case of ME - 'big Pharma' isn't the enemy. We're being screwed by governments and their agencies who refuse to take us seriously or give us any treatment. Ironically, 'big-Pharma' may be our only hope of salvation.

    So I'm not too concerned over any suggested conflicts of interest as far as physiological research is concerned. If it takes the profit motive to crack this illness then so be it. Certainly appealing for understanding, justice or to peoples better natures hasn't got us very far in the past.
  20. starryeyes

    starryeyes Senior Member

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    Veritas - Who are you?
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