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Would you try bacteriophage therapy?

Discussion in 'General ME/CFS News' started by SB_1108, Oct 9, 2014.

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Would you try Phage Therapy?

  1. Yes - I would consider traveling to try this treatment.

    17.6%
  2. Yes - But only if it were available locally.

    17.6%
  3. Maybe - I don't know enough about it at this point.

    52.9%
  4. No

    11.8%
Multiple votes are allowed.
  1. SB_1108

    SB_1108 Senior Member

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    I've seen a few people mention phage therapy in the last several months but today I was reading Cort Johnson's interview with Dr. Courtney Craig and now I'm on a new search!

    For those of you who haven't read the blog post, its pretty informative:
    http://www.cortjohnson.org/blog/201...myalgia-chronic-fatigue-syndrome-supplements/

    I'm extremely hopeful about Dr. Lipkin's study because I've felt for a long time that my gut issues were at the center of all of my condition (I developed IBS almost 10 years prior to CFS). But I'm so impatient... Of course I don't want to wait until Lipkin finally receives the funds, starts/completes the study, the results are published and then someone somewhere does something with the results that MAY result in a cure. Seems like such a long time from now!

    Anyway, Dr. Craig's discussion of phage therapy for CFS makes me highly optimistic!
    http://www.drcourtneycraig.com/blog/2014/9/27/phage-therapy

    I've noticed there is a clinic in Georgia (Country not State) that is doing phage therapy - its all I can do not to start planning my trip! hah! :)
    http://www.phagetherapycenter.com/
     
  2. Martial

    Martial Senior Member

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    Ventura, CA
    Is this GI donor stool therapy? Or something different entirely?

    edit* nevermind I read the link, does sound incredibly fascinating but I am sure it is also somewhat expensive.
     
  3. snowathlete

    snowathlete

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    Phage therapy has huge promise. I expect it will become a common treatment one day. It was only really put to one side because of the discovery of antibiotics, and now that they appear to be failing and we have a greater understanding of genetics, and better technology, bacteriaphages are being looked at again.

    So I'd have it one day (though only for ME if it was proven relevant to the disease) But not yet. It's too early and needs more research and development.
     
    alex3619 and SB_1108 like this.
  4. Lou

    Lou Senior Member

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    Has anyone tried Probiophage 42 that can be ordered on Dr. Craig's website?
     
    SB_1108 likes this.
  5. SB_1108

    SB_1108 Senior Member

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    I guess I am feeling brave these days - I am willing to be the guinea pig (but only for research that I feel like would address the problem). At the end of Dr. Courtney Craig's article she mentions a new probiotic:
    http://catalog.designsforhealth.com/Probiophage-DF-TechSheet.pdf
    I'm willing to give it a shot! I've already ordered some... will update in a few weeks or so with my results.
     
  6. SB_1108

    SB_1108 Senior Member

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    Lou - I guess we were thinking the same thing at the same time.
     
    snowathlete and Lou like this.
  7. Lou

    Lou Senior Member

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    Yes, and thanks for being guinea this time, I've done so in the past with other supplements but think i'll wait to hear what you say on this one. Hope it's a big help!
     
  8. SB_1108

    SB_1108 Senior Member

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    Well I'm updating sooner than I had planned. The distributor that I ordered from said that the Probiophage is on back order, indefinitely. So.... I guess I will have to wait.
     
    Little Bluestem and ukxmrv like this.
  9. lansbergen

    lansbergen Senior Member

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    Far to early
     
  10. knackers323

    knackers323 Senior Member

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    Interested to hear results when you get them
     
  11. Sushi

    Sushi Senior Member Albuquerque

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    I was told recently that bacteriophage therapy and research is banned in the EU and the US. It is happening in Russia though. Apparently they lack long term studies to show that there are no negative side effects.

    Sushi
     
    Helen and Little Bluestem like this.
  12. knackers323

    knackers323 Senior Member

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    Did they saw why it is not allowed to be researched? Seems stupid to dismiss something that may be useful.
     
    MeSci likes this.
  13. globalpilot

    globalpilot Senior Member

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    Ontario
  14. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    It's been used in Georgia (Eastern Europe) for decades. I wonder whether the ban is due to pressure from Big Pharma, who have a huge vested interest in standard antibiotics.
     
    helen1 likes this.

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