1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Dr. Kerr, I presume?
Clark Ellis brings us a rare interview with British researcher Dr. Jonathan Kerr who is now living in Colombia.
Discuss the article on the Forums.

Would positive xmrv = a DIAGNOSIS?

Discussion in 'XMRV Testing, Treatment and Transmission' started by fairlight, Nov 22, 2009.

  1. fairlight

    fairlight

    Messages:
    77
    Likes:
    0
    I know that some are hesitant to ask their insurance to pay for the lab tests and others are afraid to post their xmrv test results. I think this fear is either fear of being labeled with the XMRV diagnosis or fear of falling through the cracks because of no diagnosis.

    At this point I don't think that a positive xmrv result would make a person's diagnosis XMRV. Would it be considered just another piece of the puzzle, with XMRV being considered an opportunistic infection? Any thoughts on this?
  2. Alice Band

    Alice Band PWME - ME by Ramsay

    Messages:
    175
    Likes:
    0
    UK
    It's more what insurance companies and society would do to me based on what happened to people who were HIV+ in the early days. We are all in different positions and will have different reasons of course.

    A few years ago I had a major problem with an insurance company and will seriously think before putting anything serious on my medical records. ME is already there.

    When I was physically able to work ME was considered a "joke" at times and I remember the disparaging comments from people at work and in social situations. If I was ever to work again I'd not release this to people.

    There have been times as well (when ME being infectious had publicity) where people have pulled back from me - no always in a nice or tactful way.

    I remember my early HIV+ friends didn't want to kiss or hug me (for their own safety) and I quite understand that.

    I'm in the UK.

See more popular forum discussions.

Share This Page