P2P, or not P2P, that is the question
As the 16 January, 2015 deadline for responding to the controversial P2P draft report draws near, and in the interests of balance and representing the whole community, Phoenix Rising presents two differing views on how to react. Today, Clark Ellis flags up important content to...
Discuss the article on the Forums.

Would positive xmrv = a DIAGNOSIS?

Discussion in 'XMRV Testing, Treatment and Transmission' started by fairlight, Nov 22, 2009.

  1. fairlight

    fairlight

    Messages:
    77
    Likes:
    0
    I know that some are hesitant to ask their insurance to pay for the lab tests and others are afraid to post their xmrv test results. I think this fear is either fear of being labeled with the XMRV diagnosis or fear of falling through the cracks because of no diagnosis.

    At this point I don't think that a positive xmrv result would make a person's diagnosis XMRV. Would it be considered just another piece of the puzzle, with XMRV being considered an opportunistic infection? Any thoughts on this?
     
  2. Alice Band

    Alice Band PWME - ME by Ramsay

    Messages:
    175
    Likes:
    0
    UK
    It's more what insurance companies and society would do to me based on what happened to people who were HIV+ in the early days. We are all in different positions and will have different reasons of course.

    A few years ago I had a major problem with an insurance company and will seriously think before putting anything serious on my medical records. ME is already there.

    When I was physically able to work ME was considered a "joke" at times and I remember the disparaging comments from people at work and in social situations. If I was ever to work again I'd not release this to people.

    There have been times as well (when ME being infectious had publicity) where people have pulled back from me - no always in a nice or tactful way.

    I remember my early HIV+ friends didn't want to kiss or hug me (for their own safety) and I quite understand that.

    I'm in the UK.
     

See more popular forum discussions.

Share This Page