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ME/CFS and the Magic of the Canine Factor
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Would love some advice on a treatment plan...(VERY long)

Discussion in 'General Treatment' started by becky82, Feb 28, 2012.

  1. becky82

    becky82

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    Sandusky, Ohio
    Hi guys, this is my first time posting here & sorry in advance if it's very long and quite scattered. I'm actually going to paste what I posted at mthfr.net since I'm in so much pain today.

    You can read his reply here:Dr. Ben's Reply

    I've been reading the methylation forum a bit but it's so over my head and I can't seem to concentrate much anyway. I've been taking Metanx since Jan 16th but have bronchitis and am back to severe pain & fatigue (bones hurt, burning muscles like lactic acid build up, neuropathy, muscle cramps, joint aches...). I can't live like this, you guys. I have to take care of my son and NOBODY understands me or really believes there's anything wrong. My family is like, "maybe if you exercised more, you wouldn't feel so crappy." YEAH, when I exercise, it'll wipe me out for a day or two! Goodness, I don't know what to do. I'm so so overwhelmed, depressed, feel dull and lifeless and just want to die at this point. Life is not worth living if it's like this.

    Anyway, enough with my whining. Dr. Ben doesn't think my particular MTHFR mutation is that severe. Perhaps it's not, but Metanx definitely changed something and I felt remarkably different within 2-3 weeks of taking it. However, I've gotten sick & am back to severe pain and fatigue. I'm not sure what to think about that. Does anyone have any advice or tips? I'm so very depressed every day and extremely bitter that I can't live my life and give my son the mommy he needs. :( Anything at all would be helpful. Thank you in advance.

    ETA - Had my vitB12 levels checked and they were normal. My D levels are currently on the low end of normal but I supplement with 5000iu of D3 everyday.
  2. xrunner

    xrunner Senior Member

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    There are others on this forum who know much more about the issues you raised. I think it would be better if you posted the query about Metanx and your B12 status and MTHFR in the Methylation section to get some more informed opinion than mine.
    From what I know, reading various posts, I understand that
    - blood tests of B12 are not reliable as they don't reveal if you have a functional deficiency (can't explain the reason)
    - what's actually happening metabolically in you is more important than any mutation you might have (we all have some of those), which you can gauge from certain tests which others may advise.
    - considering your history and the symptoms you described it may be helpful for you to see a Lyme literate doctor who can diagnose or rule out this infection as well as others which often come with it, that's my personal opinion.
    - for your depression, there are a lot of remedies usually mentioned, however it may be worth giving Cat's Claw a try, as inflammation seems to be an issue for you. It can be surprisingly effective at lifting depression (it works very well for my mother) and it might help you with some of your other symptoms as well. If it works for you, you'll know it pretty soon.

    All the best
  3. becky82

    becky82

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    Sandusky, Ohio
    Thank you so much for your reply, xrunner. I'll go ahead and post on the Methylation forums then!! I was sort of thinking the same thing about B12, actually. That I'm not processing it properly or something along those lines. I'm also interested in Lyme but wasn't sure where to start with all the stuff going on. I really appreciate your help though and will look into the Cat's Claw too!!
  4. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    I have nothing to contribute, sorry. Hopefully someone else will chime in or the other forum will help?

    GG
  5. Jarod

    Jarod Senior Member

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    planet earth
    Hi there,

    I'm not am expert, but can give you my 2 cents.

    Everybody's situation is different so what works for one may not for the next. However, often times people end up with some kind of infection that makes us tired. Mine happens to be Lyme disease. Others have Chlamydia pneumonia, and some have mold and chemical sensitivities. Many different things that can get out of control and casue fatigue.

    A good place to start is to find an integrative doc or naturopath, and get tested for viral and bacterial infections. They then try and treat those infections with various vitamins, herbs, antibiotics or whatever it takes to boost ones immune system and reduce the infection.

    You might read around here and figure out what people are trying. Some people seem to get benefit with the methylation treatments which are relatively inexpensive and can be done over the counter. Richvank has a good protocol that is safe and effective.

    http://forums.phoenixrising.me/show...fied-Methylation-Protocol-Revised-as-of-Today

    The trick is to error on the side of caution and not do any damage.

    I benefit some by eating well and trying to heal my stomach and liver.

    Take care,
    Jarod

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