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Would a negative test ...

Discussion in 'XMRV Testing, Treatment and Transmission' started by Kati, Dec 23, 2009.

  1. Kati

    Kati Patient in training

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    at this time, affect my disability negatively?

    I just got my disability approved earlier this month, based on my functional (or lack of) assessment. I have yet to see a rheumy- probably the specialist of choice here in my area, in 2 weeks time.

    I recieved my testing kit from VIP DX this week and would like to be tested, as I want to know. Simple reason, I am curious. I am aware of the pitfall of the test, but a positive test would help me out getting tested for co-infections etc...

    I was told that perhaps a negative test could put a dent on my disability- and would like to have opinions.
    we all know that a negative test at this time is not a definitive negative. I certainly know that I have something- and am on a continuous decline since this summer.

    I so want to know!
  2. FernRhizome

    FernRhizome Senior Member

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    neg test & disability

    If you have a negative test you don't have to share that paperwork with anyone. So I wouldn't worry about that. Also a negative test could be a false negative and the testing is not yet considered utterly trustworthy.....so a negative could become a positive when the testing is more refined. ~FernRhizome
  3. Kati

    Kati Patient in training

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    The test results go to my dr's office, and they scan it and put it in my electronic file. The disability insurance has the right to look in my file.

    But I agree that a negative now could be something else down the road. Or maybe an opportunity to check out other diagnosis possibilities. :confused:
    Although I am pretty sure that ME/CFS is pretty much what I got. (and XAND???)
  4. caledonia

    caledonia

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    Cincinnati, OH, USA
    If you're already approved, they won't be looking at your file until your review comes up, in a year or whenever it is.

    What kind of disability insurance are you talking about?
  5. Kati

    Kati Patient in training

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    Long term disability= from work.

    And my file is still up there- they planned rehab for me (physio) then back to work- now- they are holding on the physio and sending an occupational therapist for me. After that, who knows.
  6. acer2000

    acer2000 Senior Member

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    I am pretty sure disability is not based on what pathogen/disease you have, but what your functional status is. For example, you can have a disabling disease (ie MS, an injury, heart failure, etc..) but if you don't have objective functional impairment that would prevent you from doing your job, you won't get disability. However, some people with those problems do get disability because their disease is severe enough. Objective evidence of impairment = low scores on neurocognitive tests, poor stamina as measured by exercise testing, SPECT scans that confirm the cognitive tests, etc... not viral titers, blood counts, etc...

    As an aside, different policies have different terms - so this might not be 100% accurate for everyone. It's just based on my experience with my employer's long term policy.
  7. Kati

    Kati Patient in training

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    Thank you Asus.

    I have a question though, how much weight does a doctor's opinion have on disability?
  8. shrewsbury

    shrewsbury member

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  9. Kati

    Kati Patient in training

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