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Worsening symptoms with MCAS meds??

Discussion in 'Mast Cell Disorders/Mastocytosis' started by bspg, Jul 26, 2017.

  1. Learner1

    Learner1 Professional Patient

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    Pacific Northwest
    I've been diagnosed with MCAS and am exploring options. Oddly, 10 years ago I'd been on Allegra, cromolyn and ketotifen and hated them all.

    95% of my symptoms went away for several years after removing food allergens, doing LDA, and upping my nutrients, particularly methylation support.

    I only seem to be reacting now after IVIG seems to have flared it up.

    When I asked my naturopath about it, he said that he'd recognized it and had me on such a robust methylation program and big doses of vitamin C. And he gave me boswellia and curcumin, including a curcumin IV which normalized me after a week of IVIG provoked symptoms.

    I see in the attached that there are also quercetin, curcumin, vitamin C, and other natural substances.

    I don't know what all the answers are here. I still have more subtle symptoms and believe I need a more comprehensive approach. But I'm finding the list of MCAS drugs I'm researching are a minefield of allergens requiring expensive compounding, while the supplements are cheaper.

    It seems that understanding what conditions are triggering the mast cells in the first place and minimizing them would be useful.

    Has anyone looked at an entirely natural approach or at least one with a minimum of drugs?
     

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  2. bspg

    bspg Plant Queen

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    @Thinktank FWIW, I'm also on ketotifen and have had almost no issues with it. I started low (.5mg) and increased my dose very slowly over a month or so (up to 2mg twice daily). I was tired and a little dizzy on first day of each increase but other than that I was fine.
     

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