Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Worldwide premieres of "Unrest"

Discussion in 'General ME/CFS News' started by Sasha, Jan 20, 2017.

  1. Sasha

    Sasha Fine, thank you

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    Ron Davis, Ashley Dafoe (Whitney's sister) and Linda Tannenbaum are Jen's guests at the premier. :)

    https://twitter.com/jenbrea

    Edit: Apologies, I got Ashley's name wrong - it's Ashley (nee Davis) Haugen.
     
    Last edited: Jan 21, 2017
  2. Butydoc

    Butydoc President

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    I will also be in attendance and will write a post about the event a few days later.
     
    Orla, actup, Cohen2 and 45 others like this.
  3. Sasha

    Sasha Fine, thank you

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    Oh, great! I hope you enjoy the film. Looking forward to hearing your views!
     
  4. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    I have photos I'm trying to post but it says the file is too big. Help! Some I tweeted so maybe someone can post them here.
     
    Izola, waiting, Neunistiva and 15 others like this.
  5. Snow Leopard

    Snow Leopard Hibernating

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    I hope the film is brilliant and a great success!

    (otherwise I'm going to cry!)
     
    MEMum, Ben Howell, Jennifer J and 3 others like this.
  6. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    If it is you'll probably cry too!
     
    waiting, Murph, Neunistiva and 11 others like this.
  7. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    It's Ashley (Davis) Haugen
     
    Neunistiva, MEMum, Ben Howell and 3 others like this.
  8. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    I just heard it got a standing ovation and everyone was crying!
     
    Izola, actup, Hutan and 36 others like this.
  9. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Ashley just texted me that "it was amazing" but won't tell me more because she wants me to see it for myself when I go in a few days. I can't wait!!!
     
    Izola, actup, Cohen2 and 23 others like this.
  10. Murph

    Murph :)

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    Here's a couple of your tweets and the pictures, slightly smaller.

    "Going in to #Unrest premiere! Ron Davis, our daughter Ashley Haugen, and Linda Tannenbaum."
    C2qcvrWWEAI_xYj.jpeg

    This one is a retweet of @ruthannharnisch. "Powerful Q&A w @jenbrea at @sundancefest as her Doc #Unrest premieres to a standing o & many many tears. #MEAction" C2rD06YVQAA9N2d.jpg_large.jpeg
     
    ballard, Izola, snowathlete and 31 others like this.
  11. Murph

    Murph :)

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    ballard, Mary, PDXhausted and 30 others like this.
  12. Jenny TipsforME

    Jenny TipsforME Senior Member

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    Wish I could go! It doesn't seem quite real that there's a successful ME documentary at Sundance.

    How on earth did Jen B pull this off in the same year as a TEDtalk? For most well people these would be standout lifetime achievements. She's a very talented woman. I know she'd say it's as much about other people's input, but actually getting other people onside and being able to collaborate is a difficult skill too. Doing it often remotely from bed. Well...
     
    Mary, Izola, DeceptivelySlow and 30 others like this.
  13. viggster

    viggster Senior Member

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    Lots of both tears and laughter (at appropriate times) during the film. I was peeking around to see how folks were reacting. It's an astounding achievement and it tells our stories so well. Everything from the score to the editing to the lighting and the cinema verite of intimate scenes is absorbing and top-notch. The first question to Jen afterwards was along the lines of, "This film makes me want to do something to help. What can I do?" And that's precisely the response we need. Jen and her team made a fantastic, moving, deeply human film and it deserves to be seen by a zillion people.
     
    Mary, Izola, rebecca1995 and 48 others like this.
  14. justy

    justy Senior Member

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    I cant wait until I can see it - im sure it will be a long wait, but well worth it! This is such a massive achievement for Jen personally, but also for our whole community.

    What can people do? Donate, demonstrate, advocate.
     
    Izola, simeyss, actup and 14 others like this.
  15. AndyPR

    AndyPR I'm a DAD, I Donate, Advocate and Demonstrate

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    I believe they are looking at ways to allow for online streaming of Unrest, plus they've been talking to the MEA about UK screenings.

    And if we make it "donate, advocate, demonstrate" we can have our own acronym, D.A.D!! ;)
     
  16. AndyPR

    AndyPR I'm a DAD, I Donate, Advocate and Demonstrate

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  17. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    What was Jen's response to the question?
     
  18. AndyPR

    AndyPR I'm a DAD, I Donate, Advocate and Demonstrate

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    trishrhymes likes this.
  19. Jenny TipsforME

    Jenny TipsforME Senior Member

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    I like this, #DADforME

    Maybe Ron could be the #DADforME poster child @Rose49 ? I know my Dad was moved by a video Ron did. Both my Dad's children have been affected by ME (i.e. me and my sister) but he's not a researcher
    I expect there's a load of dads out there feeling disempowered and up for doing something.
     
    Last edited: Jan 21, 2017
    simeyss, actup, TreePerson and 8 others like this.
  20. Sasha

    Sasha Fine, thank you

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    We need to tell people what they can do - a simple thing they can do in a few seconds while they're still interested and before they move on with other things. We can expect the film to raise awareness but not to hold people's attention. We should be putting out donation links for OMF and Solve.
     

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