Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Woman with (severe) ME in the UK complains about how the system works for ME

Discussion in 'General ME/CFS Discussion' started by Tom Kindlon, Aug 30, 2017.

  1. Tom Kindlon

    Tom Kindlon Senior Member

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    This is from the winter 2014 newsletter of the 25% ME Group:
    http://25megroup.org/Information/Newsletter/issue 38/Issue 38 .pdf
    I put it aside at the time to wait until the newsletter went online and it got lost in my bundle of things to do.

     
    Cornishbird, erin, GreyOwl and 29 others like this.
  2. Philipp

    Philipp

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    That is an incredibly concise list. Kudos to the lady who is responsible for this write-up.
     
  3. Snowdrop

    Snowdrop Rebel without a biscuit

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    @Tom Kindlon

    I know this may sound overly specific and maybe oversensitive but it would sound a lot better to me if in the title it said . . .in the UK critiques how the . . . rather than complains. Even though it's directed at us PR people.

    It's just that having spent some time now understand (in my limited way) how the system in the UK has co-opted the narrative and used spin and misinformation, well I've come to appreciate the use of how one says things for better effect. Apologies if this seems overly picky--it's not meant to be.

    Thanks for posting though the points are all very good and thoughtful.
     
  4. Mel9

    Mel9 Senior Member

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    NSW Australia

    Brilliant!
     

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