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Willy Meyer MEP asks the EU to improve diagnosis and recognition of ME

Discussion in 'Action Alerts and Advocacy' started by maryb, Mar 31, 2013.

  1. maryb

    maryb iherb code TAK122

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    Willy Meyer asks the European Commission
    to improve the diagnosis and recognition of Myalgic Encephalomyelitis.


    03/22/2013

    Willy Meyer asks the European Commission to exercise powers in the area of healthcare at European level to ensure that the health systems of the EU Member States employ procedures for proper diagnosis and that they not longer confuse Encephalomyelitis Myalgic with Chronic Fatigue Syndrome.

    Myalgic Encephalomyelitis is classified by to the international scientific community as a serious neurological disease, however the Chronic Fatigue Syndrome [CFS] is an undefined concept that can lead to errors in diagnosis.

    In 2009 the Commissioner of the Department of Health Androulla Vassiliou admitted that this term [CFS, FT] could lead to confusion and problems for patients, yet little progress has been made in correcting these diagnoses.

    People affected by Myalgic Encephalomyelitis are in a desperate situation of helplessness due to continuous misdiagnosis mistakenly qualifying their illness as a psychological problem rather than a neurological disease.

    "The public health systems of the Member States must ensure by all means at heir disposal an accurate diagnosis of all diseases recognized by the international scientific community, any error in this step has serious consequences for those affected," said the European member of the Spanish communist party Izquierda Unida, referring to the victims of this disease.

    The parliamentary question Meyer points out the need for Member States to implement the Canadian Consensus 2003/ICC 2013-criteria for effective diagnosis of Myalgic Encephalomyelitis, and also emphasizes that the European Commission should make funds available to enable biomedical research to improve diagnostic techniques and treatment options for this very serious neurological disease improve./span>

    The European Commission should also be aware that the EU Member States cannot violate international agreements which oblige the acknowledged diseases to be acknowledged; the World Health Organization acknowledges this disease [ME, FT] in its International Classification of Diseases.

    The International Labour Organization acknowledges this disease, which implies that any erroneous diagnosis of this disease is a violation of the agreements that were reached within these two institutions.
  2. snowathlete

    snowathlete

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    Good. We need to push for appropriate diagnosis and recognition.
  3. Battery Muncher

    Battery Muncher Senior Member

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    Great to hear it!

    I've now skim read the actual question he put forward, and I think it's pretty good.

    EDIT: here is the link to his written question

    http://www.europarl.europa.eu/sides/getDoc.do?type=WQ&reference=E-2013-003090&format=XML&language=EN

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