Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
Discuss the article on the Forums.

Wikipedia entry on CFS

Discussion in 'Action Alerts and Advocacy' started by cigana, Aug 31, 2013.

  1. Sean

    Sean Senior Member

    Messages:
    3,257
    Likes:
    17,985
    The Talk Page history for CFS on Wikipedia, over several years, will confirm Sciencewatcher's appalling track record.

    But, but, but,... I thought they said it was a 'non-disease' of pampered bored white middle-class women, with nothing to complain about?

    It's so hard keeping up with their latest explanation.
     
  2. alex3619

    alex3619 Senior Member

    Messages:
    12,491
    Likes:
    35,109
    Logan, Queensland, Australia
    This is ideology driving the argument. They say whatever fits their theory. Evidence seems to be irrelevant. Instead they base things on citation: can they quote something from an authoritative source? It doesn't matter if its groundless, or if it in turns cites another source, which cites another, and spirals around till it disappears in puff of speculation.

    I sent out an alert on Co-cure in 2007/8 (I don't recall which year) which was cited in Magical Medicine. In that I listed three pages of errors and distortions in the Wikipedia article. That was when people first contacted me and told me how many times they tried to fix things. Within hours its changed back, or that was the timeframe back then anyway.
     
  3. peggy-sue

    peggy-sue

    Messages:
    2,623
    Likes:
    3,256
    Scotland
    Many years ago, I changed it. I didn't do a brilliant job, not even a very good one, but it got deleted after a few minutes.
     
    alex3619 likes this.
  4. Wally

    Wally Senior Member

    Messages:
    703
    Likes:
    1,472
    I wish there was a way to expose the wizard behind the curtain.
     
    alex3619 likes this.
  5. justinreilly

    justinreilly Senior Member

    Messages:
    2,496
    Likes:
    1,214
    NYC (& RI)
    I think that the Wikipedia article is very important in the long run, but I submit now we have to focus on the IOM, CCC, and next the other HHS definition landgrabs- NIH research definition and CDC. I think after those are dealt with, one of the very most important areas is to correct the Wikipedia article and I plan to do that. As a reminder, I am not allowed by Wikipedia rules to recruit people to edit the article, so I won't do that.
     
  6. Kina

    Kina

    Messages:
    10,131
    Likes:
    17,218
    Sofa, UK
    @Wally -- you can find the article that you referred to as no longer available online here.
     
    Snowdrop likes this.

See more popular forum discussions.

Share This Page