1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Ergonomics and ME/CFS: Have You Hurt Yourself Without Knowing It?
Having a chronic illness like ME/CFS can make it hard to avoid problems that come from bad ergonomics. Jody Smith has learned some lessons the hard way ...
Discuss the article on the Forums.

Why would groups try to replicate XMRV study NOT using WPI techniques?

Discussion in 'XMRV Research and Replication Studies' started by Navid, Jan 19, 2010.

  1. Mithriel

    Mithriel Senior Member

    Messages:
    564
    Likes:
    41
    Scotland
    This study achieved its primary aim which was to get headlines in the media which rubbished CFS being associated with a virus.

    While McClure and her team may well have wanted to do cutting edge science and be first to get in with a study, SW and friends wanted to be seen to b responding but didn't wanted their careers, clinics and money to be lost.

    Making wild claims that go far beyond the actual evidence and repeating it so often people think it is the truth, is how they have always gone about research so why change now that it is vital to them.

    The IP team can carry the can if it all goes wrong.

    Mithriel
     
  2. starryeyes

    starryeyes Senior Member

    Messages:
    1,513
    Likes:
    4
    Bay Area, California
    That is brilliant!!
    The ICing on the cake. :Sign Good one:
     
  3. wornout

    wornout Guest

    Not sure If this has already been brought up.

    could the IC study been rushed to influence the following I found on ME Agenda Jan 20

    "DSM-V Somatic Symptoms Disorder Work Group presentation slides; draft due 10 February
    January 20, 2010 — meagenda
    DSM-V: APA now plan to publish draft proposals on 10 February;

    DSM-V Somatic Symptom Disorder (SSD) Work Group presentation slides

    Shortlink: http://wp.me/p5foE-2Fr

    The American Psychiatric Association (APA), publishers of the Diagnostic and Statistical Manual of Mental Disorders (DSM), plans to publish draft proposals for changes to its diagnostic categories on 10 February. [1]
    "
     
  4. Robin

    Robin Guest

    There is thread here about the DSM. Suzy of ME Agenda posts here and she and others go into detail about what it means.

    Whether or not it was rushed to impact policy? The DSM is American and the study was out of the UK so I would venture to say probably not.
     
  5. ukxmrv

    ukxmrv Senior Member

    Messages:
    3,525
    Likes:
    2,069
    London
    Some UK reasons would be

    1. The PACE trial will be completed this year and they needed to stop the publicity over those results (which will be massive) being derailed
    2. Getting their "research" published before any of the UK testers came out with public results of their private tests
    3. Beating any Euro researchers who can successfully produce positive results to the post
    4. Firmly putting into their place any UK researchers who collaborate with the WPI (i.e. Dr Kerr)
    5. Trying to influence the MRC and any new shoots of new research that could possibility come out of the recent MRC call for research and the conference (i.e. look how quickly we can discredit you and how dirty we will make the fight)
     
  6. wornout

    wornout Guest

    Thank You. Robin and ukxmrv new here and still finding my way around. thank you for info on other thread.
     

See more popular forum discussions.

Share This Page