Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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why the hell do chronic fatigue specialists charge so much?

Discussion in 'ME/CFS Doctors' started by ricericerice!, May 24, 2014.

  1. NK17

    NK17 Senior Member

    I second @Gingergrrl43 completely.

    My ME specialist does not charge more than other immunologists.

    I say this because I've seen another immunologist at a major hospital where I live and she was not only completely ignorant about ME, but spent less than a quarter of the time Dr. Kogelnik spends with his patients and she was lacking in any human touch!
    I left her office feeling several hundreds $ ripped off and depressed (one of the few symptoms I do not suffer from).

    When I saw Dr. Chia he accepted my insurance plan and he spent almost 2 hours with me.

    I'm also lucky to be personally acquainted with another ME specialist, one that has cosigned the ICC. She is in Italy and from what I remember she can see patients privately for a small charge, or you can go thru the social service by simply being referred by your local GP.
    Sidereal, Valentijn, SOC and 2 others like this.
  2. Gingergrrl

    Gingergrrl Senior Member

    @NK17, do you travel to Italy to see her or do phone/Skype consults? How did you find her? Does she do different stuff than your treatment from OMI? Sorry for so many questions!
    NK17 likes this.
  3. NK17

    NK17 Senior Member

    I doubt Dr. Carlo-Stella does phone/skype consults, unfortunately. I'd love to be her patient, but I haven't been able to travel long distance since 2011. That is the year I first contacted her and almost got to be seen by her while in Italy.

    She is fluent in english and french and she has come to the IACFS/ME conference last March in SF.

    We've a special bond because we went to the same University in Italy, but studied completely different fields (MD and JD).

    As far as treatment is concerned we have only discussed Valcyte. I'm hoping to talk/interview her and hopefully post it on PR.
    WillowJ, Sushi and RL_sparky like this.

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