The thread about the withdrawal of MERUK from the CMRC wandered off to consider whether sexism and the patriarchy has been a factor in the selection of illnesses labelled as MUS's. I'm inclined to agree a bit with arguments for this idea but thought I should bring my further wandering thoughts to a new thread. I just had a look at a few Tourette's Syndrome websites. Tourettes affects substantially more men than women (or men are diagnosed with it much more often than women - there is some thought that females might present a bit differently and not be recognised). All the websites I looked at say that the cause is unknown. Diagnosis is done on the basis of observed tics rather than any imaging or blood tests. Some people with Tourettes have temporary paralysis. Other symptoms including OCD and behavioural issues are reported as being possible parts of the syndrome. Stress makes the symptoms worse. There have been what appears to be outbreaks of Tourettes. Really, I would have thought Tourettes would be in line for being thrown in the MUS bucket before the likes of EDS. And yet, if I google 'Tourettes MUS', nothing comes up, on the first page at least. None of the websites I looked at suggested that people with Tourettes could cure themselves by telling themselves that they don't have Tourettes. None of them suggested that Tourettes was caused by childhood trauma or being a criminal or taking drugs or being a perfectionist or being overly ambitious or not sleeping enough or sleeping too long or eating the wrong food or being too self-obsessed or being hyper-vigilant or not exercising enough or exercising too much or being a bored house-wife or any other bad behaviour that could be fixed if we just tried harder. I'm sure it hasn't always been that way. But right now, as far as I can see, Tourettes isn't a MUS. Yes, CBT is offered to help people with Tourettes cope. And I can see that it might be helpful - to be more confident in potentially embarrassing situations and to maybe learn to anticipate a tic and distract the body. But no one that I have seen is telling people with Tourettes that they really don't have a medical problem and they just need to pull themselves together and stop twitching. https://www.ninds.nih.gov/Disorders...ct-Sheets/Tourette-Syndrome-Fact-Sheet#3231_5 From NIH: See - not a whiff of the psychologists coming to the rescue. (BTW, I thought this was interesting) So why does Tourettes not get a MUS label? Whereas a female reporting to her doctor that she gets temporary paralysis and muscle twitches without anything showing up on an MRI runs the risk of getting whatever current label equals 'hysterical time-waster'. Is it that the male:female ratio makes the difference? Is it that most people with Tourettes can work productively and are highly visible whereas many of us with fatiguing illnesses just loll about in an irritating but quiet way? Is there something to learn from Tourettes advocacy? Would a string of expletives directed at someone help? Anyway, just throwing it out there. Hopefully I have not offended any Tourettes sufferers. I'm happy to be corrected by people whose knowledge of Tourettes comes from more than the reading of a few websites.