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Why I turned down an all-expenses-paid trip to the 2011 Sydney Writer’s Festival

Discussion in 'General ME/CFS News' started by Bob, Dec 12, 2014.

  1. Bob

    Bob

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    This is a great blog about living with ME. It's written by Mischa Hiller, who has ME, and who wrote the (award winning) novel Sabra Zoo.


    Why I turned down an all-expenses-paid trip to the 2011 Sydney Writer’s Festival
    Mischa Hiller
    Dec 8th 2015
    https://medium.com/@mischahi/why-i-...the-2011-sydney-writers-festival-48186343a6a4

    Read the rest here:
    https://medium.com/@mischahi/why-i-...the-2011-sydney-writers-festival-48186343a6a4


    This article was written in 2011, but I think it hasn't been published until now. The author has just promoted it in a Tweet.

    It includes: a description of the illness; a helpful discussion re the nature of ME vs 'fatigue'; a short discussion of the PACE Trial; and a discussion of various ME criteria. It covers quite a range of important issues, yet it's succinct.
    .
     
    Last edited: Dec 12, 2014
  2. snowathlete

    snowathlete

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    It must really suck to be in that position. But I totally get it. My brother got married 100 miles away two weeks ago and I couldn't go. Doesn't matter how much you want to travel for something, the disease just makes it impossible.
     
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  3. barbc56

    barbc56 Senior Member

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    Bless her. All that hard work and creative endeavor and not to be able to see the recognition she deserves. I hope she can hold on to the thought that she has created something others admire but I'm sure it's not quite the same.

    Barb
     
    Last edited: Dec 12, 2014
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  4. taniaaust1

    taniaaust1 Senior Member

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    Is that link working?, my computer isnt getting it up
     
  5. Bob

    Bob

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    The link's working ok for me Tania.
     
  6. alex3619

    alex3619 Senior Member

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    I was contacted privately about two really great jobs with large multinationals, in the mid 1990s, when I was working on my PhD candidacy. I had to decline both. Its not a great feeling.
     
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  7. barbc56

    barbc56 Senior Member

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    @snowathlete

    I also missed my younger daughter's wedding. We did Skype it, but it's not quite the same. But better than nothing and felt just as proud.

    I've been thinking about starting a thread brainstorming creative ways to handle these situations when we can't be there. My daughter was the one who thought about skyping.

    Barb
     
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