Why does this give me relieve

[Darran321]

Hi All
I have only placed a few posts but I am grateful for all the replies, I was diagnosed with ME quite a few months ago. My symptoms are from the neck up only, pain in neck glands, ear ache, head pain, I suffer no other symptoms, if I go over my energy level the symptoms manifest. My doctor informed to pace myself etc,
He also made two points which I have noted, one he informed me my body is constantly in the fight or flight
Mechanism so I will not catch any cold, cough flu, which I haven't for 14 months, also he said forget supplements, If your eating a balance diet I was spending £80.00 a month on, He said you will be just Peeing them out?
I stopped 4 months ago
and seen no negitive response, Lasily more recently he told me to incorporate deep breathing exercises
From Which I have seen a disappearce of symptoms for a few hours every single time I do them. If I don't do them I can feel my symptoms returning, can anyone explain this or does anyone else find relieve whilst doing this.

 

[Valentijn]

I was diagnosed with ME quite a few months ago. My symptoms are from the neck up only, pain in neck glands, ear ache, head pain, I suffer no other symptoms, if I go over my energy level the symptoms manifest.

This would be a very odd form of ME, if it's ME at all. Is there a delay between going over your energy levels and the symptoms manifesting? How long is the delay? How long do the symptoms last?

I don't think I've heard of breathing exercises helping patients who have typical ME symptoms. There is definitely no scientific evidence of such a thing. In my case it made me feel even worse, probably because I wasn't getting enough oxygen to my brain.

"Fight or flight" explanations for ME are also very speculative and of somewhat flimsy rationality.

 

[Marky90]

I agree with Valentijn, it sounds very peculiar. Have you undergone a extensive medical assessment? If not I would return to your physician, or see a specialist.

That being said, it could just be the start of your ME (unfortunately), I didn`t fit the picture in the first 6 months either.

 

[Darran321]

This would be a very odd form of ME, if it's ME at all. Is there a delay between going over your energy levels and the symptoms manifesting? How long is the delay? How long do the symptoms last?

I don't think I've heard of breathing exercises helping patients who have typical ME symptoms. There is definitely no scientific evidence of such a thing. In my case it made me feel even worse, probably because I wasn't getting enough oxygen to my brain.

"Fight or flight" explanations for ME are also very speculative and of somewhat flimsy rationality.

 

[Mij]

@Darran321 have you had any viral testing? The symptoms you describe sound viral to me. Pacing is a good idea.

 

[Darran321]

Hi Valentijn
A good example is if a went for a long walk 1hr,, two days later the symptoms of head pain, pain in glands
And ear ache begins and will last 2/3 hrs a day for a few weeks then tail off if I pace myself properly
Isn't this PEM

 

[ukxmrv]

deep breathing doesn't make me feel any better. I've tried Buteyko and others. Glad you found something that helps you.

Here are just a few ideas

There have been reports off and on for decades about people who hyperventilate being misdiagnosed with ME and then CFS

Also there was a theory that by controlled breathing a different "atmosphere" could be created in the body making bugs easier to get rid of. Sorry, I know I am explaining this badly.

http://www.dailymail.co.uk/health/a...eat-chronic-fatigue-learning-hold-breath.html

 

[Darran321]

@Darran321 have you had any viral testing? The symptoms you describe sound viral to me. Pacing is a good idea.

I have had blood tests done three times, tested for lymes disease, glandular fever all came back negitive

 

[Marky90]

Hi Valentijn
A good example is if a went for a long walk 1hr,, two days later the symptoms of head pain, pain in glands
And ear ache begins and will last 2/3 hrs a day for a few weeks then tail off if I pace myself properly
Isn't this PEM

It`s consistent with PEM, but not necessarily that.

 

[Mij]

@Darran321 well it could still be a viral or bacterial infection. If your symptoms worsen after exertion(neck up only, pain in neck glands, ear ache, head pain) then this could be an indication that your body is fighting something.

Some people experience elevated heart rate when they're sick, this usually happens to them when their body is fighting an infection. Deep breathing might be calming down your nervous system and this is why you feel better after.

 

[Amaya2014]

Hi @Darran321 sorry you're having these health issues. I'm not in position to diagnose anyone but this may be a good place to start.

http://phoenixrising.me/research-2/...ue-syndrome-mecfs/canadian-consensus-criteria