The CDC is full of baloney. Ignore them. I had a doc who would always refer to the "physician's desk reference" when I asked for benzodiazopines. He was an idiot. But even he didn't care what the CDC said about CFS. They are completely irrelevant to everbody, except for maybe to other useless medical bureaucrats. Find a doc who believes in you. Establish a good relationship. Use your personal charms and wit. Stay with him a couple of years. Try all the useless junk he is going to push at you at first. Later ask him "as a last resort" that you need to try pain meds or whatever controlled substance. If he knows you, and thinks he can trust you, most docs will give you what you need. Good luck. Some day hopefully, the research will progress, and we won't have to play stupid games to get treatment.