The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Why do we feel better at night?

Discussion in 'General ME/CFS Discussion' started by Prefect, Jun 14, 2017.

  1. Prefect

    Prefect Senior Member

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    I see so many people on this board, including myself, experience this. I almost feel normal at night.

    Surely, if the reason for this phenomenon was investigated maybe we could come closer to finding an answer to this syndrome?

    When I think of all the times I had an infectious disease, I in fact feel the worst at night time, even with the common cold, I dread the way I begin to feel when night time hits.

    But this disease; it's almost the opposite. Makes me wonder if an infection is really behind it at all.

    I've also spoken to many people with mood disorders as well who've said they feel better at night. The conditions must share something in common in terms of the pathological process.
     
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  2. NotThisGuy

    NotThisGuy Senior Member

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    Interesting... do pathogenes have a circadian rhythm? I somewhat doubt it.
    I feel also way better at night and when I'm driving a car. Allthough long drive cars make me worse.

    My explanation was always that it boosts the HPA and/or adrenals.
    Lots of "adrenal experts" say past 22 pm we run on our adrenals. So maybe its that.
     
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  3. NelliePledge

    NelliePledge plodder

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    When I had depression, admittedly only mild, I always felt worse at night.
     
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  4. pattismith

    pattismith Senior Member

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    I do feel worse at night, there may be subgroups in our pathology that it would be interesting to study, surely!
     
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  5. arewenearlythereyet

    arewenearlythereyet CURRENTLY MODERATED FOR NOT BEING SERVILE

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    I feel better after 2pm like this is the start of the day, even though I'm up,at 7am. Think this is screwed up cortisol etc
     
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  6. Thinktank

    Thinktank Senior Member

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    I'm a morning person since battling this disease. I can do things in the morning, still brain fogged but ok to do some things. Around 14:00 i start to feel worse and at night i'm just useless with thick brain fog, feeling like hell.
     
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  7. Alvin2

    Alvin2 If humans were rational...

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    I feel a bit better at night, been like this for years, but not at all normal
    I do not know why but i work with it as best i can
     
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  8. Jessie 107

    Jessie 107

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    Yes I definitely feel better at night almost normal, though recently I have noticed the feeling crap has started to fluctuate throughout the day, weird.
     
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  9. Fogbuster

    Fogbuster Senior Member

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    I feel better around 7pm usually.
     
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  10. Fogbuster

    Fogbuster Senior Member

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    Its a very interesting symptom which definitely needs to be looked into. It's like things just go back into kilter... Only thing I know of which does something like this is Bipolar, but I'm pretty certain I don't have that.
     
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  11. dangermouse

    dangermouse Senior Member

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    This is interesting, I wonder if anyone has looked into it in relation to a possible subgroup of patients?
     
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  12. Fogbuster

    Fogbuster Senior Member

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    I can't say I'm aware of it. Hopefully someone will chime in on this thread..
     
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  13. taniaaust1

    taniaaust1

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    There is a few reasons why some may be feeling better at night

    1/ if at night you are laying about more (laying on sofa or bed doing things), this can help quite a lot if you have POTS with the ME. (so consider you may have POTS if you are better at night when laying more)
    2/ one can feel more awake/less tired at night if ones circadan rhythm is reversed
    3/ I know one of the hormone how it cycles (I forget now which) can be also the cause of someone feeling better at night.
     
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  14. dangermouse

    dangermouse Senior Member

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    @taniaaust1 now that's an interesting point re: hormones. I'd be very interested to know more about that as I'm sure my hormones are making life much worse for me currently.
     
  15. pattismith

    pattismith Senior Member

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    14h00 is also the time I start to be worse! Which means 90 mn after the food intake, which is the postprandial blood lactates peak...
     
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  16. Mij

    Mij Senior Member

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    The difference between morning and late afternoon early evenings is quite drastic for me. Cant' climb stairs (feel out of breath and shaky) in the mornings and can't walk for more than a few blocks ---------> 3pm, but in the evenings I can go power walking and climb stairs on 'good' days.
     
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  17. pattismith

    pattismith Senior Member

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    Very interesting thread!
    It may be that subgroup with problem of lactates accumulation are getting worse and worse during the day, and subgroup that improve in the evening may not have the lactate issue...it would be interesting to do a lactates test to explore this differences (post exercise blood lactates 5 mn and 30 mn, and postprandial lactates)
     
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  18. barbc56

    barbc56 Senior Member

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    Hope this is not too much off topic. I once read that some people are wired to be night people as back in the caveman/cavewomen days someone needed to be awake to protect those who were sleeping at night from predators.

    I have no idea if this is really true.

    I have always been a night person before and after getting this illness.

    Btw, you're welcome!
     
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  19. belize44

    belize44 Senior Member

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    Same here! I never feel fully awake until after 2 pm. Then I feel a bit more clearheaded, fog lifts, and I even feel ambitious! :)
     
  20. ukxmrv

    ukxmrv Senior Member

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    My daily rhythm is to feel better as the day goes on. Assumed cortisol as it corresponds with the saliva test I had plus the bloods / short synacten.

    Dr Ramsey who wrote about some of the early ME patients described the daily fluctuations. He said it was different than TATT (but maybe that just applies to people living within this 'best' rhythem)

    In an ideal world yes, this would be investigated but like everything else about this disease we just haven't had the funding for even the basics.

    I hate the mornings. It's as if a huge switch is reset between 4 and 7am
     
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