Why are people who are not affected, or have somebody close to them affected, even interested in talking about our illness? Why are physicians or members of organizations who have no acquaintance with our illness even interested in making comments? I don't understand. This illness is hardly a glamorous one. It is not even there on talk shows. How do they even hear about our illness? Even if they heard about it, why do they see a need to comment (negatively) on this? Why does this illness even pique their interest? I just don't understand.