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Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
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Who's up for an experiment? NO balance and fatigue in CFS

Discussion in 'General Treatment' started by Fejal, Sep 11, 2010.

  1. dannybex

    dannybex Senior Member

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  2. Fejal

    Fejal *****

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    I am sensitive Bex but good science is good science. Taking the word of some authority who isn’t referencing a source isn’t valid. And a list of anecdotes is just that. Moreover, MDs aren’t the only people who have good ideas and make discoveries that improve medicine. So remember that before you throw out your next new observation with the bathwater excuse of some lack of medical experience. Most MDs today just aren't putting a lot of creativity into understanding and developing cures for these autoimmune diseases. They worry about litigation and frankly it is more lucrative to be a pill pusher at a mill than trying off label drugs and supplements.

    I see Lou’s point about 25D being a VDR agonist and agree with London’s point that 25D intake therefore can’t lower 1,25D. On the other hand 25D gets converted to 1,25D by the body in the kidney (http://courses.washington.edu/bonephys/opvitD.html) so someone with elevated 1,25D shouldn’t be taking 25D orally. So people with low 1,25D shouldn’t be treated that way obviously. I’m not sure what the Marshall Protocol is doing now but if they recommend that then it doesn’t make sense however being wrong on one point doesn’t disprove the need to avoid vitamin D and light.

    I am hopeful that the BALI protocol will shorten the treatment by accelerating the immunopathology cycling and allowing a physician to zero in on the specific pathogen L-forms so that a shotgun approach like the MP doesn't have to be used, avoiding the MP's 3-5 year excruciatingly long treatment duration and hypovitaminosis D cases.

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