The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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Who's trying to get to bed and get up earlier??

Discussion in 'Lifestyle Management' started by CAcfs, Aug 22, 2012.

  1. roxie60

    roxie60 Senior Member

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    Once again, symptoms have changed and I have no understanding why. I am grateful to be able to goto bed 'at normal peoples time' (what I use to call since I couldnt go to sleep til the wee hours of the morning). I can do this about 4 out of 7 days. It is still interrupted but there is just something about being able to goto bed and fall asleep between 10 and 11PM. I had so many months of the early morning saga it is a bit of a stress relief to be able to goto bed and fall asleep. Still wake up 2-3 times but that is soooooo much better than before this change that started about 2-3 weeks ago. I dont know if this like other symptoms is temporary but for now I will just be grateful.
     
  2. TrixieStix

    TrixieStix

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    old thread i know but i have developed DSPS as a result of ME/CFS. I saw a great sleep doctor and he said there are no effective treatments and that the best thing to do if possible is to adjust your life around your body's preferred sleep/wake schedule. As for ppl who go to sleep at later and later times continuously that is an even worse sleep disorder called N24. Thankfully I as a disabled, no longer working, childfree person I am able to sleep all day and be awake all night as my brain demands.
     
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  3. flybro

    flybro Senior Member

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    I'm now able to do as my body requires, and have benefited greatly from doing so.

    Big factor for me is 'night-sweats', and I've found going to bed post 3am-ish really helps to reduce this.

    Yet another, strange but true, lifestyle adjustment that improves stuff for me.

    since doing this i have almost eliminated chest infections too.
     
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  4. perchance dreamer

    perchance dreamer Senior Member

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    I go to bed at midnight, but I'd love to do 11:30 instead. Unfortunately, I'm a night owl and can't seem to stop reading in time to get to bed earlier. Also, it takes a long time to do my sinus rinse and all the other things I need to do right before bed.

    The only way I can read for any length of time comfortably is by lying down in bed on my side, so I can't get much reading done during the day.

    Something I loathe is having to get up early and rush around. I need to ease into the day.
     
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  5. Glycon

    Glycon World's Most Dangerous Hand Puppet

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    Standard behavioral therapy for insomnia goes a little something like this:
    Homework exercise: Come up with a version of the above that would make sense for ME/CFS sufferers. :thumbsup:
     
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  6. *GG*

    *GG* Senior Member

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    Ah, nowhere near me, was thinking we could hang out some time. LOL

    GG
     
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  7. TrixieStix

    TrixieStix

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    Yeah it's benefited me physically as well, giving in to my body's "new" circadian rhythm. The sleep I get is more restorative. Not easy on my spouse though.
     
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  8. Little Bluestem

    Little Bluestem Senescent on the Illinois Prairie ❀❤✿Ƹ̵̡Ӝ̵̨̄Ʒ✿❤❀

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    What an unusually sensible thing for a doctor to say!
    Assuming you have a sofa/couch, if you got a body pillow might you be able lay on your side there and read?
     
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  9. *GG*

    *GG* Senior Member

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    Shh, don't tell some in my family this. They think I should just get to be earlier, then I would be up earlier, like I used to be :)


    Not sure how good the study is, but heard on the radio recently, John Tesh does some commentary, and it was found if you sleep on your Left side, you get better rest. Or was it the Right side. Ugh!

    GG
     
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  10. perchance dreamer

    perchance dreamer Senior Member

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    Assuming you have a sofa/couch, if you got a body pillow might you be able lay on your side there and read?[/QUOTE]

    @Little Bluestem, we got rid of our sofa and replaced it with comfortable chairs with foot stools. The 3 in our living room are in a line facing the TV.

    We are having 17(!) in-laws over tomorrow for a party and will arrange them in a more conversational way than lined up like deck chairs on a cruise ship as we usually have them.

    If I lie down to read during the day, I get really sleepy and can't really function.
     
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  11. IreneF

    IreneF Senior Member

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    Left side is better for your stomach for anatomical reasons.
     
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  12. Glycon

    Glycon World's Most Dangerous Hand Puppet

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    Depending on how normal and healthy are your innards, doesn't it? ;)
     
  13. IreneF

    IreneF Senior Member

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    Not unless your anatomy is reversed. Your stomach is tilted. If you lie on your left side things are more likely to go down instead of up. Try it some time when you have indigestion.
     
  14. Glycon

    Glycon World's Most Dangerous Hand Puppet

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    Not necessarily. (Hint: There is more inside your abdomen than just stomach. ;))
     
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  15. WoolPippi

    WoolPippi Senior Member

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    I solved my lifelong sleep-through-insomnia by lying on my right side :thumbsup:

    Turns out my colon is making gas that blocks the hepatic bend at night, causing night sweats and insomnia. (No pain though, which is why it was never suspected to be Hepatic Flexure Syndrome)
    Lying on my right side makes the gas bubble travel into the traverse colon.

    After a while I turn on my stomach and stuff bubbles along while I catch some more zzz

    For the first time in 40 years I sleep through the night! :balloons::sleep: :balloons:

    (Not tonight though. I ate french fries yesterday and the colon bacteria are feasting on the starches...:alien:)
     
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  16. Little Bluestem

    Little Bluestem Senescent on the Illinois Prairie ❀❤✿Ƹ̵̡Ӝ̵̨̄Ʒ✿❤❀

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    In IreneF's defense, she was talking specifically about the stomach.
     
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  17. Glycon

    Glycon World's Most Dangerous Hand Puppet

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    Let me rephrase myself: There are things inside your abdomen that are NOT the stomach but affect what's happening with the stomach. ;)
     
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  18. DialRight

    DialRight

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    Personally, I feel MUCH better and sleep less if I sleep at night and stay awake during the day. Sometimes happens that my daily regimen turns mad, so I go to bed about 5 AM, sleep for ~12 hours and feel awful when I awake.
    When I try to fix it, I just can't go to bed early. So here is the solution that works for me. Instead of trying to sleep earlier, I just don't sleep for a whole night. So after a sleepless night, there are no problems of going to bed like 10 PM. After that, i wake up about 6 AM, go to sleep 10 PM, rinse and repeat. Feel much better this way, I sleep less and have more energy during the day. A sleepless night is a great way to fix your sleep/awake cycle.
     
  19. Valentijn

    Valentijn Activity Level: 3

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    I tried that once when I had bad jet lag ... well, I tried staying awake a couple hours longer anyhow. My brain started partially shutting down. Vision was constantly flashing on and off, couldn't think straight, or walk properly either.

    A couple days of melatonin worked for me. Of course, it made me feel like a zombie all day, but after a couple days I was sleeping normally again and didn't need to keep taking it.
     
  20. DialRight

    DialRight

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    Yes, it's too hard to change your daily routine in just one day. If i can't do it in one day, two days usually enough. The first day I go to sleep at ~3 PM instead of 5 AM, then wake up midnight. After that, i'm able to stay awake until regular sleep hours.
     

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