1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
A disease with two faces? Re-naming ME/CFS
Persuasion Smith covers the bases on the misleading and disreputable name for our disease we've all been saddled with ...
Discuss the article on the Forums.

Whole Body Swelling

Discussion in 'Immunological' started by Valentijn, Sep 22, 2012.

  1. Valentijn

    Valentijn Activity Level: 3

    Messages:
    6,692
    Likes:
    10,146
    Amersfoort, Netherlands
    I've had swelling intermittently, but in the past it was always from eating wheat or egg whites and would go away after a couple days. But now it's been pretty much constant for the past month, even when not eating wheat or eggs. Usually it's been most noticeable in my arms and back, but for the past few days it's also been in my legs, face, etc. No other new/weird symptoms with it.

    I'm assuming (hoping) it's just a new allergy, and as of 18 hours ago I'm trying an elimination diet of lamb, rice, and pears to see if it disappears after a few days. But I'm also worried that it might be something more serious. Any suggestions? I'm currently on a smallish island far from the country where I'm properly insured (though my insurance will cover urgent issues), so would rather not have to bother with going to a doctor unless it might be serious.
     
  2. lnester7

    lnester7 Seven

    Messages:
    1,262
    Likes:
    1,163
    USA
    I have a friend who has angioedema.
     
  3. xrayspex

    xrayspex Senior Member

    Messages:
    659
    Likes:
    72
    u.s.a.
    are you on any medication? gabapentin could do that.
     
  4. Valentijn

    Valentijn Activity Level: 3

    Messages:
    6,692
    Likes:
    10,146
    Amersfoort, Netherlands
    My swelling has been pretty slow in developing, though getting worse over the past few days. Also no "pitting" when poked, though my skin stays red/creased for a long time after getting BP taken and a rubber band wrapped around an arm for blood samples. I'm also on no meds - just multivitamins, B12, and NAC, and recently fish oil and magnesium.

    I found a clinic open for a few hours today and went in. The doctor seemed pretty concerned about it, and ordered labs for EBV, auto-immune stuff, regular blood stuff, and regular urine stuff. He also ordered a sedimentation rate lab and I should get the results of that in half an hour.

    He kept calling ME/CFS "chronic fatigue", but otherwise it was a very good visit. I think having an obvious physical abnormality helps :p
     
    taniaaust1 likes this.
  5. Marlène

    Marlène Senior Member

    Messages:
    441
    Likes:
    214
    Edegem, Belgium
    Hope nothing serious.
     
  6. Nielk

    Nielk

    Messages:
    5,464
    Likes:
    6,016
    Queens, NY
    Valentijn,

    I have had this now for the past 2 months. I went to a few doctors including a Rheumatologist and Cardiologist and they could not find anything. I am really perplexed as to what is causing this.

    Hopefully, yours will not last too long.

    Wishing you the best with it,
    Nielk
     
  7. taniaaust1

    taniaaust1

    Messages:
    8,257
    Likes:
    5,216
    Sth Australia
    Best luck, Im too hoping it is nothing serious for you.
     
  8. Valentijn

    Valentijn Activity Level: 3

    Messages:
    6,692
    Likes:
    10,146
    Amersfoort, Netherlands
    The doctor just called with the results - from his home at 7:30pm!

    Sedimentation rate was a bit elevated at 25 (normal range 1-20). That's up from 21 when I first got diagnosed, but he said at that level it's really not a cause for concern.

    Everything else was normal/negative: EBV, blood counts, electrolytes, glucose, etc. He suggested I get more thorough investigation from an internist, to go back to the clinic if it gets worse, and to take ibuprofen or aleve (naproxen) if needed for pain.
     
  9. taniaaust1

    taniaaust1

    Messages:
    8,257
    Likes:
    5,216
    Sth Australia
    I hope you do follow up with an internist... it probably isnt good to put more unusual symptoms down to most probably being ME/CFS.

    Thou that food elemination diet thing you mentioned I think is really worth doing
     
    Valentijn likes this.

See more popular forum discussions.

Share This Page