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Who should I see

Messages
39
Hi everyone
I would like some advice on who I should see. I have changed my doctors twice. Because their knowledge on ME is poor. I have had all the blood tests x5 all normal, tested for lymes disease / mono etc all come back fine. One doctor told me I have ME. My symptoms are mild compared to most of you. All I get is severe head pressure pain and pain in my neck glands. It's not always there I can go a couple of days without any symptoms Then as soon as I increase my workload the symptoms return, a lot of you may say this isn't ME
But if I went for a two mile run I would spend the next day in bed with the above symptoms which would improve over the next few days.
I've found this is the best site with reference to ME and I would like any advise on who I should see privately
Darran
 

justy

Donate Advocate Demonstrate
Messages
5,524
Location
U.K
Hi everyone
I would like some advice on who I should see. I have changed my doctors twice. Because their knowledge on ME is poor. I have had all the blood tests x5 all normal, tested for lymes disease / mono etc all come back fine. One doctor told me I have ME. My symptoms are mild compared to most of you. All I get is severe head pressure pain and pain in my neck glands. It's not always there I can go a couple of days without any symptoms Then as soon as I increase my workload the symptoms return, a lot of you may say this isn't ME
But if I went for a two mile run I would spend the next day in bed with the above symptoms which would improve over the next few days.
I've found this is the best site with reference to ME and I would like any advise on who I should see privately
Darran
Hi Darran, if you let us know where you are in the world It might help people to point you in the right direction...
 

justy

Donate Advocate Demonstrate
Messages
5,524
Location
U.K
In that case the only ME 'specialists' are Dr Myhill in Wales, but shes not taking patients or Dr De Meirleir in Brussels (who I see). There are lots of threads on his treatment etc if you google his name - hes also known as KDM.