I posted last week asking for referrals to CFS specialists in Los Angeles but after a severe worsening of my symptoms this week, I've decided to broaden my search. I was wondering from all of you guys on the PR forums, who do you feel are the absolute top, most knowledgeable CFS doctors in the entire United States? Even though I am not physically well enough to fly anywhere at present, I am trying to gather as much info as I can for the future. I am finding that some specialists are focused on only one theory or treatment and I am ideally looking for someone who is VERY current on CFS research/treatment yet open minded that there can be individual causes and individual treatments for different people. The worst of my symptoms revolve around the severe mononucleosis-type fatigue, severe PEM, orthostatic intolerance, low blood volume, tachycardia, chest pressure/feeling that I am not able to get enough oxygen when I breath, etc. I have found treatments for other symptoms such as digestive problems and insomnia that have been effective, but it has not raised my overall quality of life b/c of the core CFS symptoms itself. This weekend, I was practically bed-bound due to the severity of my symptoms and unable to participate in Fathers Day plans that we had made for both my father and my husband. It is extremely frustrating and I am following a very strict regime of diet, meds, and supplements from my ND and various doctors but not seeing any improvement. I know I may be searching for something that does not exist but am also not ready to give up yet. I would love to hear from you guys (because you are the REAL experts IMO b/c you are living with the disease) which doctors you recommend. Thank you in advance from the bottom of my heart.