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White & QMUL praising PACE's value and impact for a research assessment

Discussion in 'General ME/CFS News' started by Esther12, Feb 10, 2015.

  1. Esther12

    Esther12 Senior Member

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    http://webcache.googleusercontent.com/search?q=cache:ya-oQep9QR8J:results.ref.ac.uk/(S(1x5usno2sjtyyfwoj2a5u0g5))/DownloadFile/ImpactCaseStudy/pdf?caseStudyId=18135 &cd=3&hl=en&ct=clnk&gl=uk

    Nothing that important.

    I pulled out about 25% of it for people who only want a taster, but it's not that long.

    Why the contorted 'recovered their health' rather than 'recovered'? Anyone want to guess? The phrasing is repeated later too.

    The P2P Evidence Review was critical of the PACE trial's recovery paper, and this commentary pointed out a number of problems with it too: http://link.springer.com/article/10.1007/s11136-014-0819-0

    Maybe people are starting to see through the BS.

    Funny to have them acting like BACME's support is impressive.

    Ho-ho-ho-ho-ho-ho.

     
  2. Esther12

    Esther12 Senior Member

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    Looks like Barts was using the same phrasing already. I think we've already discussed this quote before:

     
    Last edited: Feb 10, 2015
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  3. Min

    Min Guest

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    I do wonder how many patients with actual myalgic encephalomyelitis are daft enough to go anywhere near these harmful clinics for more than one visit, and what the patients they do see are suffering from.

    The patients they boast have recovered appear to have mild depression that does respond to CBT and GET, and not M.E. which does not. Both are very real illnesses but also very different.

    Surely their interpretation of their clinics' recovery rate is likely to be as surreal as their interpretation of the PACE results?
     
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  4. Sean

    Sean Senior Member

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    Weasel words, leaving a hole big enough to sail a fleet of aircraft carriers through.

    :p:p:p
     
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  5. Dolphin

    Dolphin Senior Member

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    @Maxwhd on Twitter who unearths all sorts of interesting stuff posted this on Twitter today: http://twitdoc.com/3SXO

    I've attached the file

    Impact case study (REF3b)
    Institution: Queen Mary University of London (QMUL)
    Unit of Assessment: A2 (Public Health, Health Services Research and Primary Care)
    Title of case study: Chronic fatigue syndrome

    (I don't have the time/energy to copy the whole text in as some words are being combined - maybe somebody else can?)
     

    Attached Files:

  6. anciendaze

    anciendaze Senior Member

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    Correction: "The lead researchers have worked hard to conduct monologues with patients who are not allowed to talk to other patients."
     
  7. Esther12

    Esther12 Senior Member

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    Last edited: Feb 11, 2015
  8. Esther12

    Esther12 Senior Member

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    In the Sharpe document they cite this as evidence of the value of their work:

    I started a thread on that ages back:

    http://forums.phoenixrising.me/inde...-with-data-from-pace-in-2011-still-not.23157/

    This is from the review:

    Strangely, the review has not been updated since PACE showed that CBT and GET led to no improvements in employment data.

    Their claims of positive impact here seem to be built on spin and BS. I wonder who is responsible for that?

    Also, the Sharpe document above says:

    We all know about PACE, but I also commented on the MUS study here: http://forums.phoenixrising.me/inde...genic-symptoms-a-randomized-controlled.22910/

    The control group was just usual care, and there was no significant difference between groups for their primary outcome at six months.

    "with efficacy maintained at 6 months follow-up" is another example of weasel words.

    I quoted from the google cache version, as it was easier to copy and paste:

    http://webcache.googleusercontent.c...f?caseStudyId=23887 &cd=1&hl=en&ct=clnk&gl=uk
     
    Last edited: Feb 11, 2015
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  9. anciendaze

    anciendaze Senior Member

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    When they use the acronym MUS I think "Parturient montes, nascetur ridiculus mus".
     
  10. A.B.

    A.B. Senior Member

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    It's a circus. The clowns think they can change reality by redefining it. It would even be funny if it weren't so tragic at the same time.
     
  11. Sidereal

    Sidereal Senior Member

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    Three-quarters no less! They have some nerve.
     
  12. Esther12

    Esther12 Senior Member

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    Also, this is funny evidence of 'patient engagement' from the Sharpe document:

     
  13. Esther12

    Esther12 Senior Member

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    @maxwhd tweeted out this related to the QMUL submission:

    http://t.co/KnDQADGvQZ
     
  14. Esther12

    Esther12 Senior Member

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    He also posted a link to the Richard Morriss submission:

    http://t.co/EGSveuEkGv


    reference 2 is for this trial:

    http://bjp.rcpsych.org/content/191/6/536.long

    reference 4 is for FINE.

    So twice he tested his approaches, and twice they were found to be ineffective. Those were the only controlled trials mentioned.

    So he developed a tool to help them identify those people that they can provide ineffective treatments for?

    It's a kind-of impressive achievement to have had so much influence and got so much money spent despite being so useless.

    The British Establishment just seems to be full of frauds writing reports praising one another, and then using these reports as justification for their on-gong authority, without them actually doing anything of value.

    Reading these submissions has left me even more cynical about the state of British academia. I didn't think that was possible.
     
    Last edited: Feb 13, 2015
  15. Esther12

    Esther12 Senior Member

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  16. Sean

    Sean Senior Member

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    The opening sentence is a classic case of blatantly false priming.

    FU Morriss.
     
  17. Esther12

    Esther12 Senior Member

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    This looks similar to above, but dxrevsion watch has tweeted out a series of case studies related to CFS that were submitted as a part of this project:

    QMUL and White on CFS/PACE: http://impact.ref.ac.uk/CaseStudies/CaseStudy.aspx?Id=18135
    KCL, Wessely, Chalder on CFS: http://impact.ref.ac.uk/CaseStudies/CaseStudy.aspx?Id=41185
    Edinburgh and Sharpe on MUSW and CFS: http://impact.ref.ac.uk/CaseStudies/CaseStudy.aspx?Id=23887
    Oxford and Sharpe on CFS: http://impact.ref.ac.uk/CaseStudies/CaseStudy.aspx?Id=17492
    Cumbria and Diane Cox on OT for CFS: http://impact.ref.ac.uk/CaseStudies/CaseStudy.aspx?Id=21476
    Nottingham and Richard Morriss on MUS: http://impact.ref.ac.uk/CaseStudies/CaseStudy.aspx?Id=28021
     
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  18. Esther12

    Esther12 Senior Member

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  19. Cheshire

    Cheshire Senior Member

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    http://impact.ref.ac.uk/CaseStudies/CaseStudy.aspx?Id=23887

    http://impact.ref.ac.uk/CaseStudies/CaseStudy.aspx?Id=18135

    This is just full of inaccuracies, contradictions and self-sufficiency...
    Didn't find the courage to go on.:depressed:
     
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  20. Sasha

    Sasha Fine, thank you

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    :grumpy::depressed::vomit:
     
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