Which studies are most prominent within the ME/CFS community?

[JD_Lucas]

Hi there,


I'm a newcomer to scientific research for ME/CFS. In my reading so far Ron Davis, Robert Naviaux and Jose Montoya seem to be the names which are cited the most.


The reason I ask is because I'm attempting to summarise research into images which can be easily understood and shared across the Internet (see my original thread here: http://forums.phoenixrising.me/index.php?threads/infographics-archive.55912/ )


After a bit of research I found these 2 studies:

'Metabolic features of chronic fatigue syndrome' by Naviaux
( https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5027464/ )

'Cytokine signature associated with disease severity in chronic fatigue syndrome patients'
by Jose G. Montoya
( http://www.pnas.org/content/114/34/E7150.full?sid=4fca51a6-9278-402d-af47-48d7aedc67f1 )


Could someone point me towards studies by Ron Davis?

And are there any other researchers I should be looking at?


Thanks



PS. To give you an idea, below is a draft image I created yesterday based on Naviaux's work

 

[AdamS]

Fluge & Mella:

Metabolic profiling indicates impaired pyruvate dehydrogenase function in myalgic encephalopathy/chronic fatigue syndrome

Link: https://insight.jci.org/articles/view/89376

 

[Countrygirl]

@thegodofpleasure has produced an excellent summary of the main studies over recent years. Maybe he will be prepared to share them with you.

 

[Countrygirl]

There is this one: http://forums.phoenixrising.me/inde...nd-gwi-as-unique-disorders.56018/#post-932991

 

[Hip]

And are there any other researchers I should be looking at?

A good way to dip into the many areas of ME/CFS research might be via the Phoenix Rising articles, which you can find archived here. Have a look at the Categories pop-up menu on the right of that page, which lists dozens of different ME/CFS research categories.

You will find a similar set of articles and categories on Health Rising.

 

[Countrygirl]

@Hip , who is keeping the research articles up to date, do you know? There is the new one on Nov 10th, but I don't recall seeing it in the research papers.

 

[ljimbo423]

@JD_Lucas - Here is a thread titled "What are seminal studies in ME research?" It has an extensive list of studies and researchers.

Jim

 

[Countrygirl]

https://m.box.com/shared_item/https://app.box.com/s/9s4coexxtys5bnz33i6gvqqygu67ex5o

Here is TGOP's excellent summaries of ME research.

 

[Hajnalka]

Prof. Ron Davis hasn't published on ME yet, but you might be able to extract information for your graphics from his talks, e.g. this one:

More of his talks are on the OMF youtube channel.

I guess you just would need to be extra careful how to present unpublished data (and I know nothing about copyright etc). The talks include very interesting information about a possible factor in the serum and a disrupted metabolism:

 

[Hajnalka]

I imagine the studies from the Workwell Foundation (on 2 day CPET) should translate nicely into graphics.

 

[Hip]

who is keeping the research articles up to date, do you know? There is the new one on Nov 10th, but I don't recall seeing it in the research papers.

You mean editing the old articles to update them when necessary? I don't think anyone has ever done that.

 

[JD_Lucas]

Thanks for quick & varied replies everyone! That will keep me busy over the next few weeks.

I guess you just would need to be extra careful how to present unpublished data

- Thanks for highlighting this @Joh. Not something I considered. I will start with published studies so won't be a problem in the near future, but maybe something to consider as I progress.

 

[Hajnalka]

I think I already saw a graphic from you on twitter today? Anyway, thank you for your effort!