Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Which CFS Symptom Do You Hate the Most?

Discussion in 'General Symptoms' started by mrweb, Nov 12, 2011.

  1. antares4141

    antares4141 Senior Member

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    Truth or consequences, nm
    I would rather be in jAil if it meant I could have my health back the way it was before cfs. At least I could do something productive with my time.
     
  2. antares4141

    antares4141 Senior Member

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    Truth or consequences, nm
    Mental and physical fatigue that keeps me from doing the simplistic chores. I would trade it any day for some dull type of pain (back pain for instance) that didn't limit my ability to be productive.
     
  3. Hitension

    Hitension

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    For me it has to be a toss up between constant visual disturbances which can last months on end and worsen when I try to undertake any sort of physical activity.

    Or brain fog, which I find so scary as it really takes away the essence of what it is to be human. You can't read, you can't write, you can't even talk and get your words to come out right. You literally can not even process your own thoughts clearly, and worst of all most people who look at you have no idea how awful and frustrated you are feeling.

    "You look alright to me"......they say....
     
  4. Thinktank

    Thinktank Senior Member

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    Europe + Asia
    Brain fog, cognitive impairment or mental fatigue for sure, whatever you call it. I could live with all the other symptoms which are manageable. With this brain fog i sometimes can't make heads nor tail of things so that makes it very difficult to do research, interact and many other things. Brain fog is what influences (or better yet) destroys my life.
     
  5. antares4141

    antares4141 Senior Member

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    Truth or consequences, nm
    Ever hear this? "My (fill in the blank) is ten times worse than your CFS and if it wasn't for my Iron will, superior morals, positive attitude and ability to mask my misery from everybody else I'd be just as big a looser as you!"
     

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