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Which CFS Symptom Do You Hate the Most?

Discussion in 'General Symptoms' started by mrweb, Nov 12, 2011.

  1. L'engle

    L'engle moderate ME

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    For me probably the headache that accompanies orthostatic intolerance and feels like a suffocation of the blood vessels leading to my head. Like an altitude sickness headache, I'd imagine. I hate this the most because it feels like if the back of my head is suffocated enough to hurt like that it is likely causing brain damage. It's not even such a sharp pain as a migraine but it is very heavy, and suffocating, sort of like there are lead bars up the back of the neck and into my head.

    It's a toss-up between that and the deadened, flattened feeling of my brain, but I think the suffocation headache has probably caused that, over the long term.

    Blech, going to read something more fun now!
    aimossy likes this.
  2. ixchelkali

    ixchelkali Senior Member

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    Long Beach, CA
    Gee, with so many possibilities, it's hard to pick one. Mostly, it's whichever one is worst at the moment. The OI and flu-like PEM limit my activities the most. But if I have to choose the worst I guess it's the brain fog. It's the one that most affects my concept of myself, and makes me feel like I'm not ME anymore. Also, I think I could adjust to a mostly horizontal life without being so disabled, if only I could make my brain work. I've always been a "words" person, and I don't like being able to express myself, even to myself. I could still be a systems analyst if my brain worked. I could entertain myself by reading, learning new things, even watching movies, talk to friends on the phone. I could make a contribution to the world. Be creative. So if I could wave a wand and make just one symptom disappear, that's what I'd choose.
  3. Nielk

    Nielk

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    By far the winner is:

    Severe sinus/migraine like headaches that are constantly there. Sometimes it feels like a sledgehammer is doing overtime in my brain!

    Losing my capability to function as a human being and watching how it effects my family comes in second.
    vli likes this.
  4. wanttorecover

    wanttorecover

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    Heat intolerance
    allyb and aimossy like this.
  5. Lacey

    Lacey

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    The muscle pain, which causes sleep problems (hurts to sleep, hurts to stay awake), and migraines. And the tiredness/lack of energy soon as I wake. The way good days make me want to do things then I get cut down immediately and need to rest. Makes me feel like 80 some days.
    allyb and jeffrez like this.
  6. LisaGoddard

    LisaGoddard Senior Member

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    I was about to post my bit: 'cognitive dysfunction is worse', but I paused because I couldn't remember if I had already posted that on this thread. Well that just underlines the point! Cognitive.
    L'engle, MeSci, Fogbound and 3 others like this.
  7. meandthecat

    meandthecat

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    The Horror....is all I can call it as pain and nausea swell and time dilates and thought is gone.
    rosie26 and allyb like this.
  8. jeffrez

    jeffrez Senior Member

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    Have to say it's a tie between the bodily fatigue and the brain fog/concentration/cognitive issues. Truly couldn't say which I would "trade" in exchange for not having the other, they both suck and are the worst part of the illness for me. I'd probably welcome the insomnia if I didn't have ME/CFS - get more done. :D
  9. Tammy

    Tammy Senior Member

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    New Mexico
    the orthostatic intolerance because when I have it my brain feels inflamed like it's running a fever and all my other symptoms are worse as a result.
    L'engle and allyb like this.
  10. rosie26

    rosie26 Senior Member

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    I can't choose which symptom is the worst or most hated. I felt like I had the worst of everything for too many years.
    allyb and aimossy like this.
  11. aimossy

    aimossy Senior Member

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    OI,gut stuff, nerve sensations and nervousness, heavyness and fogginess cognition problems.
    how everything fluctuates within the day/night.
    this all makes you chronically uncomfortable with no sense of control over your body and completely stuffs up making plans and preforming tasks.
    rosie26 likes this.
  12. end

    end Senior Member

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    The depression I feel knowing there is no end to all the suffering in sight

    Hence my name
    Last edited: Nov 2, 2013
    Tito, rosie26, allyb and 1 other person like this.
  13. August59

    August59 Daughters High School Graduation

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    Upstate SC, USA
    Screwed up sleep and anxiety, unless I over do it physically then I'm sore as hell for 2 days and this doesn't include if I get a case of PEM.
  14. Fogbound

    Fogbound

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    Cognitive dysfunction. I'm struggling so much just thinking what else to write, so I'll leave it at that!
    rosie26 and ggingues like this.
  15. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Midwest, USA
    Cognitive dysfunction. If my brain worked better, I would do a better job of managing my other symptoms.
    L'engle, Fogbound and rosie26 like this.
  16. adreno

    adreno 3% neanderthal

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    Tundras of Europa
    OI.
    rosie26 likes this.
  17. maryb

    maryb iherb code TAK122

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    L'engle and rosie26 like this.
  18. PNR2008

    PNR2008 Senior Member

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    I hate the pain in my legs, back and arms. I feel heavy like a big hand is holding me down in bed and I'm sinking backwards. There is the burning under the skin from FM in legs, shoulders and arms, numbness and tingling from neuropathy in my feet and hands, the rubber band stretching and constricting of RLS in legs and arms that allows no sleep, the sciatica that always comes with exercise and my personal favorite the pain that intense weakness brings from near syncope because of POTS. There is no hell, this is it.
    rosie26 likes this.
  19. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Cornwall, UK
    1. Nausea (thankfully rare now)
    2. Polyuria, as it makes sleep difficult and also makes going out or having people round difficult and often embarrassing. Also very tiring having to keep getting up to go to loo.
    3. Insomnia, as it makes me feel so run-down and generally ill. (Don't get this so much now either, thank goodness)
    rosie26 likes this.
  20. gettinbetter

    gettinbetter

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    PEM I hate it
    because it leaves me bedridden sometimes
    I don't have it as bad since I started taking abx for Chlamydia Pneumonia

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