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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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No, I'm a bit in the dark as to my genetics. I've had a 23&me kit sat on my desk for over 6 months. I've paid for it so I really should send it off even if it's just to rule it out.@arewenearlythereyet Do you know the status of your genetic makeup wrt MTHFR?
I'm compound heterozygous 1298/677 yet seem to be doing okay. Taking supplements such as MethylCobalamine didn't produce a dramatic improvement.
The only improvement that Methylcobalamin produced was less of a reaction to foods due to it's effect on T suppressor cells when large doses are taken. I got more of an improvement from hydroxycobalamin which really helped a lot. Methylcobalamin short circuits normal B12/SAM-e processes whereas Hydroxycobalamin allows it to function more normally.@arewenearlythereyet Do you know the status of your genetic makeup wrt MTHFR?
I'm compound heterozygous 1298/677 yet seem to be doing okay. Taking supplements such as MethylCobalamine didn't produce a dramatic improvement.
Should have said that I take a mixture of hydroxy and methyl now I'm on the transdermal oils which is loads better than the methyl sublinguals.The only improvement that Methylcobalamin produced was less of a reaction to foods due to it's effect on T suppressor cells when large doses are taken. I got more of an improvement from hydroxycobalamin which really helped a lot. Methylcobalamin short circuits normal B12/SAM-e processes whereas Hydroxycobalamin allows it to function more normally.
I have not had a genetic test but I suspect that my MTHFR is seriously impaired based upon family history.
"The Food Intolerance Bible" by Anthony Hayne is a great resource. It has lots of great self-quizzes to help you figure out your issues.But four or five days a week I eat fruit for afternon snack e.g. two apples or nectarines - I am trying to cut back because the sugar may be giving me candida. But it's difficult to think of replacements. One thing I've noticed is my tongue is quite white and furry, something must be causing this.
Similar to those with Short Bowel Syndrome, some people with ME/CFS ferment carbs into d-lactate and an elevated level of that of that can cause a lot of neurological symptoms.But I noticed that I was feeling malaise immediately after eating a meal - horrible brain fog and fatigue.
Postprandial hyperemia perhaps?Do you experience malaise or a slump after eating a meal?