1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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What's worse than CFS/ME

Discussion in 'General ME/CFS News' started by Lee Ann, Apr 15, 2011.

  1. Lee Ann

    Lee Ann

    Messages:
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    Tennessee
    At this point with atypical CFS?? or secondary CFS, is really not knowing what mystery illness my body possesses. Worse than a disease itself, is not having a definite diagnosis. I don't know what direction to take, what medicines to try, what supplements to buy, what the hell to do. I've carried my lifeless body to so many doctor's offices, (13) I can't stomach the thought of seeing another trained professional (sarcasim) who will give me another round of useless and expensive tests and tell me I am normal...Yippeee.... So, I guess my point to my rambling is, I feel hopeless and like I am stumbling in the dark and I want to scream....Can't somebody please tell me what is happening to my once healthy body....

    Thanks for being here....
    Lee Ann
     
  2. ixchelkali

    ixchelkali Senior Member

    Messages:
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    266
    Long Beach, CA
    :hug::hug::hug:

    Know the feeling. It's not much of an upside, but at least we're all stumbling in the dark together. I'd scream, too, if I had the energy.
     
  3. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
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    909
    Concord, NH
    Could you go see Dr. Klimas? You are closer than mysefl, and I am considering it.

    GG

    PS How about the ACAM website for a dr? or Functional Medicine: http://www.yourmedicaldetective.com/public/department138.cfm
     

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