1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Science to Patients: Talking ME, Exercise and the Mitochondria - with Dr Charles Shepherd
The latest video release from the Dutch group ME/cvs Vereniging, with Dr Charles Shepherd from the UK ME Association, and announcing a live chat session to be held Thursday, April 10, 2014...
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What's worse than CFS/ME

Discussion in 'General ME/CFS News' started by Lee Ann, Apr 15, 2011.

  1. Lee Ann

    Lee Ann

    Messages:
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    Likes:
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    Tennessee
    At this point with atypical CFS?? or secondary CFS, is really not knowing what mystery illness my body possesses. Worse than a disease itself, is not having a definite diagnosis. I don't know what direction to take, what medicines to try, what supplements to buy, what the hell to do. I've carried my lifeless body to so many doctor's offices, (13) I can't stomach the thought of seeing another trained professional (sarcasim) who will give me another round of useless and expensive tests and tell me I am normal...Yippeee.... So, I guess my point to my rambling is, I feel hopeless and like I am stumbling in the dark and I want to scream....Can't somebody please tell me what is happening to my once healthy body....

    Thanks for being here....
    Lee Ann
  2. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    263
    Long Beach, CA
    :hug::hug::hug:

    Know the feeling. It's not much of an upside, but at least we're all stumbling in the dark together. I'd scream, too, if I had the energy.
  3. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    3,877
    Likes:
    751
    Concord, NH
    Could you go see Dr. Klimas? You are closer than mysefl, and I am considering it.

    GG

    PS How about the ACAM website for a dr? or Functional Medicine: http://www.yourmedicaldetective.com/public/department138.cfm

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