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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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What's up with Wikipedia's XMRV page??!!

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by leaves, Apr 3, 2010.

  1. Koan

    Koan Be the change.

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    I think that over the years I've been watching Wiki there has been a decided trend in the direction of a balanced, supportable view of what CFS is. The page is much better, even, than it was the last time we discussed it on this forum. The psychologizers get cut no more slack than do the so far unsubstantiated biological theories and the general tone is now that CFS is a serious biological illness. That's enormous progress and, under the circumstances, all we can expect at the moment.

    I want to formally thank those here who have been responsible over the years for ensuring that Wiki has kept abreast of the science and knocked back those who would run with the looney speculation. This process, I believe, has worked. It would not benefit us in any way if, for instance, Wiki had put forth as fact any biological theory which has been speculated in the past. While one of them may resurface in the future as the crux of the matter, so far, none have been proven to be. And, while I believe XMRV is at the heart of ME/CFS since it fits my experience so tightly, I must allow that this remains unproven in any way which does, or even should, satisfy an "encyclopedia" at the moment.

    So, thank you to all of you who edit Wiki - I have done in the past but do not at the moment - what you are doing is working. There is necessary tension and you are doing a great job of exerting it at your end.

    Many, many thanks for that!
     
  2. Gerwyn

    Gerwyn Guest

    even no one has yet attempted a replication study
     
  3. Andrew

    Andrew Senior Member

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    Los Angeles, USA
    I can't find a technical objection to it now.
     

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