Choline on the Brain? A Guide to Choline in Chronic Fatigue Syndrome
http://phoenixrising.me/research-2/the-brain-in-chronic-fatigue-syndrome-mecfs/choline-on-the-brain-a-guide-to-choline-in-chronic-fatigue-syndrome-by-cort-johnson-aug-2005
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What's the most similar disease to ME/CFS for assessing off-label treatment options?

Discussion in 'General Treatment' started by Jesse2233, Aug 22, 2017.

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What's the most similar disease to ME/CFS for assessing off-label treatment options?

  1. Rheumatoid arthritis

    0 vote(s)
    0.0%
  2. Multiple sclerosis

    3 vote(s)
    37.5%
  3. Sjorgen's syndrome

    0 vote(s)
    0.0%
  4. Lupus erythematosus

    0 vote(s)
    0.0%
  5. Crohn's disease

    2 vote(s)
    25.0%
  6. Scleroderma

    0 vote(s)
    0.0%
  7. Myasthenia gravis

    0 vote(s)
    0.0%
  8. PANDAS/PANS

    0 vote(s)
    0.0%
  9. Guillain Barre

    3 vote(s)
    37.5%
  1. Jesse2233

    Jesse2233 Senior Member

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    To be clear I'm talking about post-viral ME/CFS of a likely autoimmune origin.

    --------------

    There are many drugs that few ME/CFS patients have tried, and many people with "chronic fatigue" inadvertently mischaracterize themselves in drug review databases. As a result there are a lot of nebulous diagnoses and limited treatment entries when ME/CFS is used as a critieria for drug review sites.

    So recently, while trying to find a good immunosuppressive drug, I've been looking at other major autoimmune disease treatment reviews to see what puts people into remission in those conditions.

    Which disease is the best analogue? I don't think anyone knows for sure, but my hope is that some crowdsourced wisdom will provide a degree of clarity. Thus this poll.

    ----------------

    If an option is not listed here, please post it below.

    Thanks!

    PS - I've purposefully left off POTS/dysautonomia, MCAS, MCS, Lyme, and fibromyalgia because they are so commonly co-morbid and tend to suffer from the same review issues as ME/CFS.
     
  2. Jonathan Edwards

    Jonathan Edwards "Gibberish"

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    As an international authority on autoimmune disease I can confidently say that we have no idea.
    Several conditions on your list are not autoimmune diseases.
     
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  3. Valentijn

    Valentijn Senior Member

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    That's a lot of assumptions which don't seem particularly warranted based on the available evidence.
     
    barbc56 and arewenearlythereyet like this.
  4. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Mollarets meningitis although not autoimmune, it is an interesting comparison to cfsme.
     
    Jesse2233 likes this.
  5. Jesse2233

    Jesse2233 Senior Member

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    Which evidence? It seemed the growing consensus at the OMF Symposium was an autoimmune etiology. Perhaps the "post viral" should be "post infectious"
     
  6. Jesse2233

    Jesse2233 Senior Member

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    Do you think there's any value in looking at other autoimmune / inflammatory diseases to asses treatment options?
     
    62milestogojoe and Gingergrrl like this.
  7. Gingergrrl

    Gingergrrl Senior Member

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    Jesse, Maybe put MG/LEMS to include both?
     

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