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Graham McPhee spells out some of the cold, hard facts about the dismal state of ME research and politics, and has some suggestions as to what we can do about it ...
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What would YOU say?

Discussion in 'Action Alerts and Advocacy' started by Timaca, Dec 8, 2011.

  1. Nielk

    Nielk

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    Queens, NY
    for #3 - Just look at their eye roll when you explain what's wrong with you.
     
  2. Tristen

    Tristen Senior Member

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    Northern Ca. USA
    Think of the worst case of the Flu you ever had, multiply that by 10, and imagine having that 24/7 for decades....that's us.

    Labeling this disease under it's least troublesome symptom has lead the world to believe we are malingerers, when it fact we are severely ill.

    Someone must ask why we have been left as roadkill for the psych camp when we have volumes of documented evidence showing a physical illness of a profoundly debilitating nature.
     
  3. redrachel76

    redrachel76 Senior Member

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    Israel
    1.) Research shows it can more disabling than AIDS, MS and Cancer

    2)It is not just tiredness or Fatigue - those are the least worst symptoms

    3)Graded exercise therapy and psychiatric/psycology approaches worsen M.E more than anything.
     
    Ocean and ahimsa like this.

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