1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Join the National PR Campaign for ME: Power to the Patient (P2tP)
Have you had enough of all the neglect and abuse of ME/CFS patients? Gabby Klein says now is the time for a National PR Campaign for ME/CFS to impress a change. Join the Patient Revolution to restore power to ME patients ...
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What would YOU say?

Discussion in 'Action Alerts and Advocacy' started by Timaca, Dec 8, 2011.

  1. Nielk

    Nielk

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    5,267
    Queens, NY
    for #3 - Just look at their eye roll when you explain what's wrong with you.
     
  2. Tristen

    Tristen Senior Member

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    Northern Ca. USA
    Think of the worst case of the Flu you ever had, multiply that by 10, and imagine having that 24/7 for decades....that's us.

    Labeling this disease under it's least troublesome symptom has lead the world to believe we are malingerers, when it fact we are severely ill.

    Someone must ask why we have been left as roadkill for the psych camp when we have volumes of documented evidence showing a physical illness of a profoundly debilitating nature.
     
  3. redrachel76

    redrachel76 Senior Member

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    Israel
    1.) Research shows it can more disabling than AIDS, MS and Cancer

    2)It is not just tiredness or Fatigue - those are the least worst symptoms

    3)Graded exercise therapy and psychiatric/psycology approaches worsen M.E more than anything.
     
    Ocean and ahimsa like this.

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