1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Nitric oxide and its possible implication in ME/CFS (Part 1 of 2)
Andrew Gladman explores the current and historic hypotheses relating to nitric oxide problems in ME/CFS. Part 1 of a 2-part series puts nitric oxide under the microscope and explores what it is, what it does and why it is so frequently discussed in the world of ME/CFS. Part 1 focuses...
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What Will Happen To M.E.?

Discussion in 'General ME/CFS Discussion' started by Karenironside, Apr 3, 2014.

  1. I write a blog inspired by my experiences of ME.

    Today's blog: Serious Potholes in the Road

    My road towards acceptance of my illness.

    www.whatwillhappentome.wordpress.com

    Thanks

    Karen
    rosie26 and taniaaust1 like this.
  2. taniaaust1

    taniaaust1 Senior Member

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    I like your blog, its well written.
    Karenironside likes this.
  3. barbc56

    barbc56 Senior Member

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    Welcome to the forum, @Karenironside

    I really liked your blog and look forward to reading more in the future.

    I have always preferred saying coming to terms instead of acceptance. There are some things I will never accept in life but coming to terms with it just seems more proactive as well as productive. It's only a semantic difference but nevertheless for me, the two terms mean something different.

    Again, welcome.

    Barb
    Karenironside likes this.
  4. Misfit Toy

    Misfit Toy Senior Member

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    Welcome, Karen. I am glad you got out and were able to make that meal! Hurray! I also like the phrase, coming to terms instead of acceptance. I will never completely accept it. I try to manage with it. There are plenty of pot holes, stop signs and dead end streets on this journey. A huge thank you to those green lights we get here and there
    Karenironside likes this.
  5. justy

    justy Senior Member

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    Great Blog.
    Karenironside likes this.
  6. GracieJ

    GracieJ Senior Member

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    So sorry you may be facing this. All too common.

    Your charting of symptoms blows my mind. I have never been able to track anything from onset, so your ability to stay focused is admirable. I hope for you it continues.

    Any ideas yet on what direction you may head? This is a tough one. For me, trying to choose a different line of work eventually had to be abandoned. There was no way I could do the studying and support myself at the same time, and then it was obvious I could not handle the load of any new training at all, even if by some miracle my living expenses were covered.
  7. Unfortunately I haven't a clue! This is part of the coming to terms process. I still really hope I can return to teaching but I must be realistic!!

    Thanks for your support.
  8. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    I changed jobs, took leave without pay to try other things as I thought it was my job making me so miserable. But learning something new was hard and also they don't expect the new guy to have too many sickies? I went back to my original job and changed a few things, reduced my hours and was able to get out of night shifts, made a big difference. After finding some good treatments I'm functioning better and mostly enjoying work I guess. I could always live the life of a multi millionaire ???

    Good luck with finding something that suits well.
  9. minkeygirl

    minkeygirl Is Jim Jones alive and well on PR?

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    One of the hardest things was not being able to work. I was too sick in the beginning and then I was not able to go back. My work defined me. It was a place to go where I knew what I was doing and who I was. It was my social life.

    Not having that was huge and a blow to my self esteem. I'd love to be able to just sit in a file room and do something, have something that was mine, but I doubt that's going to happen.

    I'm envious of those who can still work. Hope you can figure it out.
    Tito and AndyPandy like this.
  10. Thank you for all your words of support. Minkeygirl you have described my feelings perfectly.

    I have always said though that with every cloud there is a silver lining it just takes too damn long sometimes to spot it!
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  15. Today's blog: Guilt Huh Yeah! What Is It Good For? ... Absolutely Nothing!


    A patient's sense of all pervading guilt about being a burden.


    www.whatwillhappentome.net
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  17. justy

    justy Senior Member

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    Thanks Karen, I very much enjoy your blog, and often find a lot that resonates.

    All the best,
    Justy.

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