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Nitric oxide and its possible implication in ME/CFS (Part 1 of 2)
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What Types of Fatigue Do I Experience Poll

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by Cort, Mar 6, 2010.

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What Types of Fatigue Do I Commonly Experience?

  1. Post-exertional Malaise - Symptoms increase significantly after relatively mild amounts of lexertion

    320 vote(s)
    84.9%
  2. Brain Fog - I experience significant difficulty concentrating, speaking with ease, etc.

    315 vote(s)
    83.6%
  3. Wired But Tired - Feelings of low energy along with a sense my system will not calm down

    268 vote(s)
    71.1%
  4. Molasses Fatigue - Feelings of heaviness in the limbs are common

    236 vote(s)
    62.6%
  5. Flu-like Fatigue - flu-like feelings accompanied with fatigue are common

    259 vote(s)
    68.7%
Multiple votes are allowed.
  1. AFCFS

    AFCFS Senior Member

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    NC
    I can identify with those, especially "- difficulty reading/understanding something written for more than a few seconds type fatigue"

    I would add:

    Feel like ran a 1000 miles and then got run over by a train, while mind approaching some fugue state of conscious blankness, in no way suggestive of an enlightened state fatigue
    MishMash likes this.
  2. Tinks

    Tinks

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    I get brain fog especially when I get really dizzy ...I have Meniere's to deal with as well. People who don't suffer with brain fog just don't seem to understand what its like ...they make me feel like the" village idiot" at times.:confused:
  3. Wifi123

    Wifi123 Senior Member

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    I am givin Melatonin a go for sleep and for brain fog.
  4. Banksy

    Banksy

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    Dubrovnik/Croatia
    afcfs i like ur list o_O especially neck hurt fatique. everytime i have to go to some meeting or coffee with friend(very rare) im holding my chin with palm of my hand. and also i woult say -something is attached on back of my head ant is sucking hell out from me fatique. and i wont even mention awake feeling dizzy and stay that way like from 3am till i get up around 7-8am(ok i mentioned:)). the last one is killing me.
  5. peggy-sue

    peggy-sue

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    A very interesting point has been raised here with regard to driving.
    I'm well aware I will probably get shot down, but I do have very strong feelings about road safety and the responsibility of drivers to be fully in charge of ALL their faculties when driving.
    Quite bluntly, I do not think that anybody with ME should be allowed to drive.
    Folk with ME have reduced physical and mental capacity and slow reactions.
    Folk with ME are a serious danger on the roads - to themselves and others.

    But mention this to a driver with ME ?
    (Oh, I couldn't possibly manage without my car!)

    It'll be like telling a drunk they're unfit to drive...
  6. justy

    justy Senior Member

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    Hi Peggy Sue - totally off topic i know but i agree that driving with M.E is a hazardous affair that should be considered seriously by the driver with M.E (DWME)
    But (sorry there had to be one) i live in a very remote rural area - up a bridal path inbetween fields and woodland. I am relatively housebound - i cant physically drive more than a few miles due to brain fog etc caused by concentration. But if i didnt ever drive my car i would leave the house even less frequently! my nearest shop/town/life is 3 miles away. no public transport. Most of the time i only go out when taken - this is hideously restrictive. I cant drive the 30 minutes to the train station so cant go anywhere alone ever. Once approx every two weeks i drive to town. Alone. Carefully and meet up with a friend for lunch or a quick look in the charity shops beofre heading back to the prison of my home.

    Once or twice a month i drive the 3 miles to town to take my daughter to ballet - its touhg if i never ever take her and hard for my husband to do all the running around as well as all the working for money, shopping etc etc.

    Even if we had a bus i couldnt use it as i cant walk around twon much and need to park more or less outside the shop. So i hope you will reconsider your position that no one should ever be a DWME.

    What about the mildly affected? how can they work and schlepp about on public transport? I was only mildly affected when i learnt to drive and was perfectly safe so long as i knew my own boundaries (no driving alone at night, frequent stops if motorway driving (cant imagine ever being able to do that again!)

    All the best, Justy.
  7. peggy-sue

    peggy-sue

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    Sorry.
    On the grounds of safety and responsibility, I simply cannot condone it any more than I would ever condone drunk driving.
    You are putting other folk's lives at risk, not just your own.
    Moving from your remote rural area to somewhere you can manage without driving is your only option.
    I have never driven - I am far too nervous, I would be a serious danger on the roads. (driving at 20mph or under; never, ever taking a right turn, but doing 3 lefts instead - I could not stop in the middle of a road at a junction with traffic coming up behind me.)
    So, I have always had to live my life within the restrictions of being a non-driver. It is perfectly possible.
    You simply have to make sure you live where you can use public transport to get to your work, and where you can get to local shops easily. If it means taking a lower paid job, so be it.

    Currently, I can walk to my local shops about twice a week. I cannot manage buses into town, (too much standing around and sensory overload) so apart from those wee walks, I am housebound unless I am chauffeured.

    I'm sorry to sound so harsh - your comments, Justy are the ones I've heard from every single driver - that they absolutely MUST drive.
    But how would you feel about it if it were your daughter killed by a driver who had put "relief from their own boredom" before your daughter's life?
  8. anna8

    anna8 Senior Member

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    Hi just and peggy-sue,
    Funny you should mention driving, I've just renewed my driving insurance, there was a question of why are you unemployed?
    Have you got any medical conditions? Now what do you say as technical I do not have a medical condition in the eyes of the medical profession!
    I don't think I could cope without a car,I find it to be my life line as I live on my own. I hate asking people for anything although I do have to give into it sometimes!
    I think we all have different degree of symptom..
  9. peggy-sue

    peggy-sue

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    :cry:

    I'm glad I don't take my wee walks near any of you lot!
  10. anna8

    anna8 Senior Member

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    Hi peggy-sue,
    I like your honesty,and in someway you are right but like any illness people have different degree of symptoms,
    I,ve been driving for over 20 years touch wood not one accident..
    I hope this makes you feel a bit better about taking your wee walk near me! lol
    ,
  11. justy

    justy Senior Member

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    Well peggu DSue, perhaps you have the luxury of being able to move somewhere else. Do you suggest i leave my husband and children to live next to a shop, becuase you are not comfortable with me driving. I would not and do not drive further than i am able. I am a very competent driver. i drive on small country lanes, never on motorways. I drive very sensibly and dont speed. If i dont feel well enough to drive, i do not drive. I dont have any friends or realtions to help. I am totally dependant on my husband. Its hard enough being so inafntilised, without being told you cant drive. I have struggled to overcome agoraphobia, brought on by years of medical neglect - if ic an drive more i will.

    I'm certainly safer than all the 80 -90 year old farmers round here!
  12. peggy-sue

    peggy-sue

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    Justy, :oops: I'm really sorry you've been the (very responsible) person who was honest and open enough to reply to my point and make your position known - and I'm afraid that's the reason I have ended up "attacking" you - please, please don't take it personally, I do not expect you to up sticks and move - your point about the ancient farmers is a very valid one indeed! I hope too, that any other drivers on your roads are well aware of ancient farmers and drive carefully for the sakes of all.
    I most certainly do NOT expect PWME to be able to "just up sticks and move"!
    I'm also sorry I didn't apologise and explain that all sooner.
    I've started a thread on the driving thing, which is what I should have done in the first place.
    Sometimes, I have to grab a thought while I'm having it, or it will vanish forever.
  13. John H Wolfe

    John H Wolfe Senior Member

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    London
    Wired but tired and heavy limbs are transient/cyclical (and linked to each other) for me, whereas the others are pretty much 'always there in the background' to some extent (this seems dependent on whether I'm in relapse/remission e.g. in the wake of a viral infection)
  14. Wifi123

    Wifi123 Senior Member

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    Have always believed that my ME/CFS symptoms of above are extreme and are caused by electromagnetic radiation and fields from wireless technology and electric technology through the smart grid network.

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