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What treatment has worked for you?

Discussion in 'General Treatment' started by SaveMe, Feb 25, 2011.

?

What treatment is working best for you?

Poll closed Aug 1, 2013.
  1. LDN (low dose naltrexone)

    0 vote(s)
    0.0%
  2. Immunovir

    66.7%
  3. Valcyte

    33.3%
  4. Xyrem

    0 vote(s)
    0.0%
  5. Hepapressin ( generic Kutapressin ) injections

    0 vote(s)
    0.0%
Multiple votes are allowed.
  1. SaveMe

    SaveMe *****

    Messages:
    421
    Likes:
    1
    the city
    I will give LDN a shot and post my experience soon. Ive only tried inosine so ill vote for immunovir. From my research these appear to be the most promising treatments for ME . Hepapressin ( generic Kutapressin ) injections is what I pulled from Dr. Enlenders website. I did try Savella (for FM) but got really nauseous and lost my appetite on it. I also tried Inosine and got really bad muscle aches. Weird, i know.
    Thanks


    OH---and feel free to list a treatment if its not listed above.

    just called my pharmacy for cost of Valcyte 450mg for a months supply (30) is $1493.00! and the drug is used for AIDS and CMV.
  2. garcia

    garcia Aristocrat Extraordinaire

    Messages:
    933
    Likes:
    102
    London, UK
    When you say "worked for you", do you mean:
    1. a cure
    2. substantial improvement
    3. some improvement in fatigue
    4. any unspecified improvement
    ?
  3. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    7,124
    Likes:
    4,373
    australia (brisbane)
    it depends on what testing finds, if your looking into valcyte, u may find famvir alot more affordable and just as effective as some of us have found. Its not suppose to work against cmv but it has in my case and others with hhv6 have found it lowers viral titres. In my case cycloferon was the next biggy and i cant do without my sleep meds which i alternate amongst a few to avoid tolerance. Adrenal hormones if low are worth looking into if testing low eg cortisol and dhea etc.

    So far not a cure but an improvement and still improving and adjusting things as i go.

    cheers!!!
  4. SaveMe

    SaveMe *****

    Messages:
    421
    Likes:
    1
    the city
    I left it open to interpretation.

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