Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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What the P2P Draft Agendas Show

Discussion in 'General ME/CFS News' started by jspotila, May 22, 2014.

  1. jspotila

    jspotila Senior Member

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    Through FOIA, I got copies of two draft agendas for the P2P Workshop. The overview framing of the meeting is the public health problem of "overwhelming fatigue or malaise" and more time is allocated to CBT/GET than to symptom based medication.

    http://www.occupycfs.com/2014/05/22/p2p-agenda-fatigue/
     
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  2. Roy S

    Roy S former DC ME/CFS lobbyist

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    Illinois, USA

    Thank you for doing the FOIA's, Jennie.
    Needless to say -- this doesn't look good.
     
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  3. A.B.

    A.B. Senior Member

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    Trying to find THE cause of, and THE treatment for fatigue is like trying to find THE cause of, and THE treatment for nausea, or fever, or any other superficial symptom. This approach is flawed from the start. Maybe the people behind this are simply incompetent and unable to see what is obvious, but I would say it's more likely that they know exactly what they're doing and want to obfuscate certain difficult health problems to avoid having to take responsibility.
     
  4. jspotila

    jspotila Senior Member

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    BINGO

    I don't have proof for either explanation, but I am really struggling to see how this approach makes sense to them. That view of the problem seems like another planet to me.
     
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