Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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what symptoms "count"in ME/cfs?

Discussion in 'General Symptoms' started by Allyson, May 24, 2013.

  1. Allyson

    Allyson

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    Australia, Melbourne
    Interesting post in form a fb friend

    Every time I've heard Mary Dimmock speak she's been impressive:


    "CDC states that Oxford, Fukuda, Canadian and the ME-ICC “identify similar pools of patients”.

    But Fukuda does not require PEM and Oxford only requires 6 months of fatigue and allows psychiatric illness.

    Numerous studies have shown that these definitions are not all the same patients.

    Yes, ME is heterogeneous but this heterogeneity is a manufactured artifact of inappropriately combining all these diverse definitions and conditions into one clinical entity called CFS."

    Link to short article

    http://thoughtsaboutme.com/2013/05/23/mary-dimmocks-may-2013-cfsac-testimony/



    cheers

    Ally
     
    biophile, *GG* and Shell like this.
  2. Shell

    Shell Senior Member

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    England
    I hope the CFSAC meeting will be up on Youtube. I can't read much at the moment. I need to hear it.
     
    Allyson likes this.
  3. Bob

    Bob

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    England (south coast)
    Videos of the whole event will be placed online.
     
    Allyson likes this.
  4. Allyson

    Allyson

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    Australia, Melbourne
    thanks Shell and Bob; please do post if so

    thanks

    Ally
     

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