The Institute of Medicine (IOM) has invited Phoenix Rising to make a presentation to the Institute of Medicine Committee on ME/CFS. The committee's first meeting will be on January 27-28, 2014 in Washington DC, and there will be an 'information-gathering session' on the afternoon of January 27 that will be 'open to the public, both in-person and virtually'. We have been invited to speak to the committee during the afternoon session, and to prepare 5-7 minutes of remarks in response to the following question: “What is the most important aspect or information that this committee should consider throughout the course of the study?” We want our presentation to fairly represent the views of our members, so we are inviting members to give their thoughts on this thread regarding what we should say to the IOM Committee in answer to this question. Please keep your points as succinct as possible - bearing in mind that we only have 5-7 minutes. Towards the end of this thread, I will do my best to summarize all the points made into an outline of our presentation, and we will try to include in our presentation as many of the views expressed on the thread as we can.