I'm at the tail end of 14 months of mysterious symptoms. Much subdued to what most here have. Monthly bouts of unexplained fatigue and crawling sensations that would last about 7 days then disappear. Culminating at the 9 month mark with neurological problems setting in (muscle twitching all over my body, neuropathy, nerve pain, poor circulation, headaches, spine pain, calf spasicity, and exercise intolerance). Absolutely zero lesions of any kind on MRI (Brain, Neck, Spine) - no MS Negative EMG for neuromuscular atrophy - no ALS Negative test results of every kind known to man. Only abnormalities: 1) False positive lyme antibody (followed by neg WB, PCR, C6 Peptide) 2) Low testosterone: 340 (range 300-1100) 3) Low SED rate: 1 4) Low Estrogen: 1 6) Extremely low cholesterol (near 100) 7) High CD8 Activity with normal CD4 8) Slighly elevated Lymphs. 9) Positive CMV antibody - twice, yet Negative CMV PCR As a result, doctors sent me home "healthy". "CMV can't cause all of this, so its clearly in your head" I am now at about month 14 and through my own research, have settled in on a regimen addressing the most likely candidates. Mitochondrial / DNA Damage / Dysfunction from Medications taken when this started, and a couple other things. My regimen has been whiddled down to: 1) Daily organic vegetable juicing 24oz greens, colors, etc. 2) Mitochondrial Supplements (ALA, RLA, CoQ, Carnitine, PQQ,etc) 3) Vitamin D maintained at roughly 55. 4) Dead Sea Salt Mineral Baths 4x a week for 20 minutes. 5) Gatorade (helps with twitching - while other mineral supps did nothing) 6) Physical Therapy - Exercise 3x a week 7) Exclusively Paleo diet - with Organic Potatoes for Carbs only. I notice that when I am growing tired, the twitching and symptoms increase. So I do feel there's a significant element of improper energy production in my body (mitochondrial dysfunction). In any case.... I have been waiting since November for an appointment with Klimas around May 1. I am terrified. Why? Because doctors have proven themselves to be utterly pointless. Useless. I've already done the "months wait" for another guy who wasted my entire visit telling me "its not the meds you took". Offered no solutions. No tests. And then talked trash about Klimas a little. I do not want to wait 6 months for an appointment and get shoo'd out of there like I always do. I have absolutely no hope that Klimas (or Rey is who ill probably be seeing) will be any different than any other doctor. I don't have "traditional" CFS. I am not that extreme. I can operate for the most part normal if I stay on top of my regimen without any exceptions. My worst day is a burning, aching foot and calf, with muscle twitching all over my body and feeling crappy / less energetic. Im not like many of you who struggle to get out of bed, and can't function. So if she gives me a CFS questionnaire I am going to fail it and probably get sent home right? Part of why I am worried about seeing Klimas: I am in Miami. Every neurologist and infectious disease doctor I have seen has been a former student of hers. And they all think im insane. One even told me this was all in my head, while telling me that Klimas can help if anyone can. If these are the products of Klimas then I have no hope with Klimas. She is going to laugh me out of the room and I will have wasted 6 months of my life waiting. I want to present my situation to her (or Dr. Rey) in a manner which will motivate them to concern, and to act. I can't show up looking weak and miserable with black circles under my eyes. If i stay on my regimen, I will show up looking fit, and athletic and healthy. I refuse to take this without fighting it, and my regimen has taken me from 20% to 80%. But I want to be at 100%. If I walk in there at 80% i am not going to have any clinical manifestations for her to see. I already had one dumb doctor say: "You're the picture of perfect health" How do you know that without lifting a finger to check? Another one said: "Wow you're a lot younger than the patients I normally see" And? Idiot ... (im almost 39) They don't know that I've spent the last 6 months house-bound simply because I feel like crap, tired, or walk around any given day with stabbing nerve pain, or burning/freezing foot, or the muscle on the temple of my head is twitching like crazy, and I can't concentrate. Can't work. Can't function socially. Haven't gone on a date since last August. Something is definitely wrong, and its affecting my lifestyle, but I can't seem to crank out any abnormal bloodwork or fall over dead in their office like they want me to. So "its all in my head". I want complete immune testing, but I fear she wont give it to me. I want complete infection testing, but I fear she wont do it. I feel like I need to come up with a speech, and rehearse it with emotion and intensity .... because any time I present meekly to a doctor, they disrespect me and send me home "healthy". Im sick of it, and I hate that I am so worried about the appointment. I should be excited and glad to finally be helped, but I know how this is going to go. It always goes this way. Suggestions?