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What Peter White is teaching Medical Students on CFS via a chapter in a medical textbook

Discussion in 'General ME/CFS News' started by Dolphin, Jan 3, 2014.

  1. Bob

    Bob

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    When I read that (fairly reasonable) section of the text i was pleasantly surprised, which softened me up so that I wasn't expecting the onslaught that came after it. The quoted section seems incongruous with, and contradictory to, the section about CFS so I reckon they were written by different authors or co-authors. (i.e. I reckon that Pete White did not write the intro re functional disorders in general, but only wrote the CFS section.) (I'm just guessing though.)
     
    Last edited: Jan 11, 2014
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  2. Bob

    Bob

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    @biophile. Great post. If you've got energy/time/inclination, I think you should consider taking up @Firestormm's suggestion of writing an article based on your post. (We can help you edit it, if you like.) (Just a suggestion - please don't feel any pressure about it.)
     
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  3. Bob

    Bob

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    Occasionally I have a temporary crisis of 'faith' whereby I lose my sense of optimism about our direction of travel.
    This textbook section re CFS, along with some of the comments below this article (see comments by Mitchell Lawlor, under the article), have led to me to having such a reaction this week.

    I was thinking of starting a thread asking people to remind me of all the positive things going on at the moment for ME/CFS, in order to renew my optimism for 2014.
    Edit: I've started a thread, here:
    http://forums.phoenixrising.me/inde...ve-things-happening-in-2014-for-me-cfs.27527/
     
    Last edited: Jan 11, 2014
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  4. user9876

    user9876 Senior Member

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    Maybe editors or reviewers put it in. It seems strange to say that as causes are known something will be reclassified and then to write about treatment on the basis of the classification that it will loose.
     
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  5. taniaaust1

    taniaaust1 Senior Member

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    If the rest of the medical book is good (which it is likely to be), they probably wouldnt worry and at the most just avoid teaching the ME/CFS part (if they were at all in the first place) if there had been too many complaints. Of cause that would mean that future medical people reading that book would still likely to see and probably read the ME/CFS chapter anyway.

    I really think its at the republishing level.. it needs to be stopped. Medical books get updated all the time.
     
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  6. taniaaust1

    taniaaust1 Senior Member

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    Dont loose hope, get ANGRY instead. If anything can help us start getting more involved in trying to change what we see and even if we are pushing ourselves over the edge to do it, its the drive of anger.

    That is what finally made me do two petitions in the past week.

    I too think the worst the issues are which are showing.. maybe the more easier it would be to prove...... if we went some strong routes to put a stop to it.
     
  7. Dolphin

    Dolphin Senior Member

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  8. Bob

    Bob

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    To persistently suggest that improvements seen in a trial control group are improvements due to therapeutic intervention - is that fraud? (It can't stupidity, because he designed the trial.)
     
    Last edited: Nov 19, 2014 at 11:51 PM
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  9. Snow Leopard

    Snow Leopard Senior Member

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    Improved, or ticked a different box on a questionnaire? ;)
     
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  10. Min

    Min Senior Member

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    There is no specialist care for myalgic encephalomyelitis in the UK, only GET and CBT nonsense.
     
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  11. GracieJ

    GracieJ Senior Member

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    That reads like something written a hundred years ago.
     
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  12. user9876

    user9876 Senior Member

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    Given the new commercial nature of the NHS it would be interesting to know what Barts is promising the clinical commissioning organizations in terms of results when touting for work. If a drug company were to mislead in this way what action would be taken?
     
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  13. Ren

    Ren Primum Non Nocere

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    Surface-level observations:

    Kumar & Clark is published by Saunders Ltd (based in Philadelphia USA), an imprint of Elsevier. (1),(2) “Following the tradition of quality started by W B Saunders more than 120 years ago, each work is written by experts in the field, edited to reflect the latest research…” (3)


    “Elsevier B.V. (Dutch pronunciation: [ˈɛlzəvir]) is an academic publishing company that publishes medical and scientific literature. It is a part of the Reed Elsevier group*. Based in Amsterdam, the company has operations in the United Kingdom, US, Mexico, Brazil, Spain and elsewhere.” (4)

    “In December 2013, Elsevier announced a collaboration with University College, London, the UCL Big Data Institute…Elsevier's investment is "substantial" and thought to be more than £10 million.” (4) [General FYI: Per Fink co-author Anne Mette Skovgaard is affiliated with UCL.]

    “In 2010, Elsevier reported a profit margin of 36% on revenues of US$3.2 billion…Elsevier's high profit margins and copyright practices have subjected it to much criticism.” See also criticisms related to weapons industry, shill review offer, and cost of knowledge protest.(4)(5)


    * “Reed Elsevier is an Anglo-Dutch multinational publishing and information company co-headquartered in London, United Kingdom and Amsterdam, Netherlands…. Net income £1.110 billion (2013)… Erik Engstrom (CEO) (6).

    “He [Engstrom/Engström] has a BSc from the Stockholm School of Economics [Sweden], an MSc from the Royal Institute of Technology in Stockholm [Sweden], and an MBA from Harvard Business School where he was a Fulbright scholar.” (7)


    Elsevier’s neuroscience education endeavors:

    “Morristown, NJ, 10 February 2005 - Elsevier’s International Medical News Group (IMNG) is pleased to announce an educational alliance between the Neuroscience Education Institute (NEI) and Clinical Psychiatry News to create and deliver high quality medical education for psychiatrists and allied health professionals.

    NEI is an independent, Accreditation Council for Continuing Medical Education (ACCME)-accredited, provider of continuing medical education (CME) and a leader in psychopharmacologic education. NEI has been recognized for its innovative contributions to psychiatric education through such awards as the 2002 Lundbeck International Neuroscience Foundation (LINF) Prize…” (8) (See also Lundbeck (9)).


    And more recently:
    “It [Reed Elsevier] has strengthened its presence in digital media and, in April [2013], acquired Mendeley, a social network for academics.” (10) “David Dobbs, in The New Yorker, described Elsevier's reasons for buying Mendeley as two-fold: to acquire its user data, and to 'destroy or co-opt an open-science icon that threatens its business model.'” (11)


    (1) http://store.elsevier.com/Kumar-and-Clarks-Clinical-Medicine/isbn-9780702044991/
    (2) http://en.wikipedia.org/wiki/Saunders_(imprint)
    (3) https://store.elsevier.com/Saunders/IMP_23/
    (4) http://en.wikipedia.org/wiki/Elsevier
    (5) http://en.wikipedia.org/wiki/The_Cost_of_Knowledge
    (6) http://en.wikipedia.org/wiki/Reed_Elsevier
    (7) http://en.wikipedia.org/wiki/Erik_Engstrom
    (8) http://www.elsevier.com/about/press...nce-educational-alliance#sthash.2Faif5JA.dpuf
    (9) http://forums.phoenixrising.me/inde...-from-rebecca-hansen.29011/page-2#post-508084
    (10) http://www.euroinvestor.com/news/2013/09/25/reed-elsevier-cfo-resigns-update-2/12508391
    (11) http://en.wikipedia.org/wiki/Mendeley


    Perhaps someone (or a group of someones ) should write an open and of course respectful letter to Mr. Engström, explaining how Saunders/Elsevier's info does not reflect experts' "latest research" in the field and ask Mr. Engström to consider updating ME/CFS info according to, for example, the CCC and/or ICC and/or IACFS/ME Primer?


    -------------------------


    Edit: It appears that Malcolm Hooper tried to alert Engström to problems with Engström's ME/CFS publications (the Lancet with PACE?), but Hooper seems never to have heard from Engström or his office.

    http://www.meactionuk.org.uk/Comments-on-PDW-letter-re-PACE.htm
     
    Last edited: Nov 21, 2014 at 7:00 AM
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  14. leela

    leela Slow But Hopeful

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    [shudders]
     

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