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What Percent of Patients With ME Had a Confirmed or Supposed Viral Onset?

Discussion in 'General ME/CFS Discussion' started by cman89, Sep 9, 2016.

  1. cman89

    cman89 Senior Member

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    I am wondering what (estimated) percentage of ME patients have a confirmed or strongly suspected viral onset of illness? This is opposed to a bacterial infection or a slow decline type situation....
     
  2. taniaaust1

    taniaaust1

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    I cant remember ever seeing a study on this, I hope someone can answer this as it is an interesting question.
     
  3. wastwater

    wastwater Senior Member

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    I'm acute EBV onset,I think I saw some pie charts online detailing the percentages.
    Don't have ME/Cfs diagnosis,time will tell I guess still waiting for a test
     
    Last edited: Sep 12, 2016
  4. Forbin

    Forbin Senior Member

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    This ME Alliance report by Charles Shepherd, et al., gives a figure of 75% for sudden onset "often dating back to an acute viral infection." Not all sudden onset cases have a viral suspect, but my impression is that those cases that do account for the majority of that 75%.

     
    merylg, osisposis and MEMum like this.
  5. cman89

    cman89 Senior Member

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    The reason I ask is I am currently dealing with symptoms that ive had in the past that are just not going away....unlike before. I also think that unlike other flare ups this one is indeed viral, though I really would love a positive ID.
     
  6. osisposis

    osisposis Senior Member

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  7. cman89

    cman89 Senior Member

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    I was in an entire infectious country. ...namely India.
     
  8. Mij

    Mij Senior Member

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    @cman89 did you receive any travel vaccines for your trip?

    My onset was acute viral, I suspect I may have recovered from the initial hit but went back down when I received several vaccinations during the viral episode.
     
  9. belize44

    belize44 Senior Member

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    I contracted Epstein Barre when I was 18. It came and went for a long time, but what really gave me the knockout punch was a Hepatitis B shot that was mandatory for students starting out in healthcare careers (where I was going to school at the time.)
     
    merylg likes this.
  10. cman89

    cman89 Senior Member

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    I had a bit of a cascade of events. I had a Hep A vaccine, Typhoid, was exposed to air pollution, and possibly mold, though I cant be sure on that one.
     
  11. cman89

    cman89 Senior Member

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    I wonder if the order of stressors influences illness effect? Mij, what vaccine did you have during the acute onset episode?
     
  12. Mij

    Mij Senior Member

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    @cman89 I had a rubella, tetanus, Hep B x2 within a one month period just after the viral onset. It was after the second Hep B shot that I started slowly losing stamina. I also had highly elevated anti-thyroid antibodies soon after the second Hep B shot.
     
    merylg likes this.
  13. cman89

    cman89 Senior Member

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    Interesting. Yeah, I havent had those since childhood, nor do I plan to. I regret getting them tbh, since something felt off after getting the first round, though very low grade and subclinical.
     
    merylg likes this.
  14. cman89

    cman89 Senior Member

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    Do you have thyroid dysfunction?
     
  15. Mij

    Mij Senior Member

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    @cman89 I don't have thyroid dysfunction.
     
  16. cman89

    cman89 Senior Member

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    Ok. well, that at least is good.
     
  17. Tammy

    Tammy Senior Member

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    Confirmed EBV onset for me. I don't understand why Dr's would say after awhile that the EBV is no longer a problem.......tests just show a past infection. OH Yeah? ..............then why am I still sick? I started a protocol a little over a year ago using herbal anti-virals against the EBV and am getting better..................I don't feel like the walking dead anymore.
     
    merylg likes this.
  18. cman89

    cman89 Senior Member

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    i really suspect that this will be a ticket for me right now. Do you mind if I ask what anti virals you are using? I am on a few, but I want to go full bore on this right now.
     
  19. taniaaust1

    taniaaust1

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    There are lots of other ME/CFS triggers which full into the sudden onset catagory eg vaccinations. Rate of ME/CFS cases being caused by vaccinations is said to be 5%-10% . So this is for just one non viral trigger causes a sudden onset.

    (Hep B vaccination may of been "one" of the triggers of my ME/CFS. I had multiple things going on at the time)
     
    Tammy and Mij like this.
  20. Tammy

    Tammy Senior Member

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    My protocol against EBV.

    Natures Answer Non alcholol Cats Claw liquid................Natures Answer Non alcohol licorice root liquid..............L-lysine (taking 2,000 mgs 2x daily).............Ester C (taking 2,000mgs) 2x daily. Global Healing liquid B12, Eidons liquid Zinc sulfate................Hawaii Pacifica Spirulina..........Vimergy barly grass juice powder. I had to start out with LOW dosages of everything and work my way up.
     
    cman89 likes this.

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