Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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What NOT to say to someone with ME/CFS - from the BBC

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Jan 26, 2016.

  1. charles shepherd

    charles shepherd Senior Member

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  2. sarah darwins

    sarah darwins I told you I was ill

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    That's actually pretty good! But then, Newsbeat and Newsround have been the BBC's best news output for years, much better than the "grown-up" news.

    I guess the contributors are too young to have heard much of our old favourite "ME? Yeah, I had that."
     
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  3. Sidereal

    Sidereal Senior Member

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    Not bad.
     
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  4. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    They forgot "But you look so well!".
     
  5. worldbackwards

    worldbackwards A unique snowflake

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    Felicity Morse, social media editor at Newsbeat is a former ME patient. Had some choice words to say about the PACE Telegraph coverage as I recall. Perhaps she was involved, be surprising if she wasn't.
     
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  6. sarah darwins

    sarah darwins I told you I was ill

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    That's interesting.
     
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  7. worldbackwards

    worldbackwards A unique snowflake

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  8. Mary

    Mary Senior Member

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    I especially liked the comments made by the young people who had CFS/ME - this in particular hit me:
    I can't imagine being that young and that sick. Full-blown CFS/ME didn't hit me until age 47 (after a slow steady decline of some 12 years)
     
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  9. Marco

    Marco Grrrrrrr!

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    Fair enough and I know it's aimed at youngsters but what about us 6 foot 121/2 stone males who've had it for 30 years?
     
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  10. jimells

    jimells Senior Member

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    We are Useless Eaters...
     
  11. taniaaust1

    taniaaust1 Senior Member

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    good article .. and its great to see an article focused on the younger ones with this, those who should be in their prime. Helps with the misconception still out there that one has to be older to get this.
     
  12. Snow Leopard

    Snow Leopard Hibernating

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    Least offensive media article I've read all week!
     
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