Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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What natural supplements can be used to build blood volume in POTS?

Discussion in 'General ME/CFS Discussion' started by Peyt, Sep 21, 2017.

  1. Peyt

    Peyt Senior Member

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    Hi,
    Does anyone know what natural supplements could be used to build/increase blood volume in POTS?
    As far as pharmaceuticals, here is the list I have:
    Fludrocortisone (Florinef)
    Oral contraceptive pills
    Clonidine
    Vasopressin

    But I am looking for natural herbs and supplements. Anyone knows?
    Thanks so much.
     
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  2. Philipp

    Philipp

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    Licorice root can work, but for a supplement/herb it can have pretty heavy side effects if not well tolerated or overdosed. I do sometimes take it as a tea in the mornings and it tends to reduce my OI quite a bit, but more than one cup makes my tummy ache-y. IIRC it works like a mild version of aldosterone. It may not be so great to combine it with pharmaceuticals (or if you already have high blood pressure, but I do not even know if that is ever possible in someone with POTS).

    It is possible to take glycerol (e.g. via glycerol monostearate) with (a lot of) water to increase blood volume because it is pretty hygroscopic, but for me personally the effect does seem to be pretty transient. I have not experimented at length and paid a lot of attention to that, however. Some 'Pump'-powders for sports performance add Taurine of which I do not know how it works regarding blood volume but it has some properties that have to do with osmotic stuff.
     
  3. JaimeS

    JaimeS Senior Member

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    Mid-Ohio Valley, United States
    When I was dxed with POTS, the first thing the doctor said was to monitor my fluid intake to at least 2-L a day and sprinkle just a pinch of salt in a glass of water if I felt worse. Super-cheap and for my minor to moderate POTS, and very helpful.

    Didn't make it go away, note -- but did help.
     
  4. echobravo

    echobravo Keep searching, the answer is out there

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    Norway
    Not exactly supplements, but compression garments will reduce pooling of blood in feet (stomach?). Eat smaller meals (less carbs) might draw less blood to digestion?

    Like @JaimeS said, drink water and add salt (my doctor said up to 10g pr day).

    Recently, I am looking into the effect of stress and high cortisol on circulation and blood sugar levels - wake up 03 at night with heartbeat, dizzy standing up...
     
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  5. Groggy Doggy

    Groggy Doggy Senior Member

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    Will your health insurance pay for weekly saline IVs (lactate ringers)?
     
  6. manasi12

    manasi12

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    Licorice might worsen adrenal fatigue..
     
  7. kangaSue

    kangaSue Senior Member

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    If there is a physical cause of POTS, no supplement is going to offer a cure, maybe just moderate symptoms. One such little known physical cause of POTS is left renal vein compression and in many cases, treating the compression (major surgical procedure) stops POTS too.
     
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  8. Peyt

    Peyt Senior Member

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    This is very interesting,
    Is there any information or studies/papers on POTS and left renal vein compression that I can read upon?
     
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  9. Invisible Woman

    Invisible Woman Senior Member

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  10. kangaSue

    kangaSue Senior Member

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    Brisbane, Australia
    There is very little in the way of research articles in the literature about how LRV causes POTS, only mention that there is a connection.

    I have had some exchanges with a transplant surgeon in the US who is currently working on a paper about it and he is of the opinion that increased venous pressure in the adrenal gland causes a problem either with aldosterone or norepinephrine but also agrees with research findings that increased venous pressure in the kidney reduces the renin ouput to impact on the renin-angiotensin-aldosterone system in a way that is not yet fully elucidated. The latter has only been studied in chronic kidney disease though.

    There is no one symptom set. Hematuria is the most common finding but it's absent in about 20% of cases.

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2878259/
    [Takebayashi et al61 clinically differentiate NCS into 3 subtypes: idiopathic renal bleeding, massive orthostatic proteinuria (protein level >400 mg/dL), and severe orthostatic intolerance that markedly impairs activities of daily living.5 Severe orthostatic intolerance, as previously described by Stewart et al,66 is accompanied by LRV occlusion in 70% of cases. Idiopathic renal bleeding and massive orthostatic proteinuria are seen in 18% and 14% of patients, respectively,5 and are caused by lysis of red blood cells in the urine.67 Degrees of proteinuria vary depending on postural changes.43

    Chronic fatigue syndrome and fatigue symptoms have been associated with NCS with high LRV-IVC pressure gradients.19,66,68 Fatigue symptoms correlated positively with high peak velocity (PV) ratios by DUS and improved in some patients after surgery, balloon angioplasty, or aspirin therapy.3,68,69/ ]

    https://www.ncbi.nlm.nih.gov/pubmed/22573421
    https://www.ncbi.nlm.nih.gov/pubmed/16047645
     
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