The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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What medication for correction of the immune system does help you?

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by Ekaterina, Nov 8, 2015.

  1. Ekaterina

    Ekaterina

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    Hi, guys!
    The cause of my CFS is my intestines and I try to fix the problem. My gut treatment helps me, but for me it's not enough, I still feel ill all the time. I feel fatigue, weakness and flu like symptoms. I know that underlying cause of my condition is my immune system, because a lot of people have inflammatory bowel disease but doesn't have problems that I do. In this case I want to try to fix somehow my immune system. I'm gonna visit immunologist soon and want to ask you all: What drug for correction of the immune system does help you? I'm gonna discuss various medications with dr. Thank you!
     
  2. SOC

    SOC

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    The immune system is extraordinarily complex, so there isn't one fix-the-immune-system treatment. What is perfect for one person's immune dysfunction could be very bad for another person's dysfunction. I could tell you what I'm getting that helps me, but that would be useless (or even harmful) to you unless you have exactly the same immune dysfunctions I do, which I doubt.

    Your immunologist needs to run tests to see what is wrong with your immune system and treat you according to your specific problems. A more useful question at this point might be: What testable immune dysfunctions have been found in PWME? Then you could ask your immunologist to test for them. Once you have your labs back and know what your particular immune problems are, you might get some helpful information here about what has helped with that particular dysfunction.
     
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  3. ahmo

    ahmo Senior Member

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    Northcoast NSW, Australia
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  4. minkeygirl

    minkeygirl But I Look So Good.

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    My immunologist/allergist was an idiot about ME/CFS. So much so that he wouldn't treat me with ivig unless I had a psych eval. to make sure my symptoms were physiological. He would not run labs for infections.

    Because his focus was asthma research and had zero understanding of ME, despite the studies I brought to show him, it caused him to IMO misdiagnose me. Much more complicated.

    The first one I saw, also an allergist primarily, she wouldn't even diagnose me.

    I left with nothing from this guy. My NP is the one who gets all this.
     
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  5. halcyon

    halcyon Senior Member

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    Equilibrant has helped for me.
     
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