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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Just wanting to get some feedback as to what people use for their ME headaches.
No medication ever touched my headaches--nothing. Then they disappeared after treating the gut with rifaximin as Crux mentioned.I first learned of this when @Sushi posted about rifaximin alleviating her migraines.
If it's the chronic/constant pressure headache, 1 gram of high EPA/DHA fish oil three times per day (3 grams total daily) does it for me. It takes about 24 hours to start working, and the headache comes back after a similar amount of time if I forget to take a few doses.Just wanting to get some feedback as to what people use for their ME headaches.
Coffee has become a real help, I now drink 2 cups regularly, on bad days I have a 3rd.
I wish it had done this for me as I can get almost daily migraines and get into phases when they come daily. I know my gut isn't right and have had a month's treatment with Rimfaxamin at 600 mg daily but my gut symptoms have come back.No medication ever touched my headaches--nothing. Then they disappeared after treating the gut with rifaximin as Crux mentioned.
Yes. I drink green tea early AM, and later PM.Mmm, coffee good. Do you still drink green tea ? good too