Discussion in 'General ME/CFS Discussion' started by bostjan01, Feb 7, 2018.
Did you look at the website neurosymptoms.org ? What do you make of it ?
Does he have any evidence for this assertion?
He references the neurosymptoms.org website
Myasthenia gravis is generally diagnosed with a blood test that looks for antibodies against nicotinic acetylcholine receptors.
MS is more difficult to diagnose but usually involves an MRI and/or looking for chronic inflammation in the cerebro-spinal fluid.
I'd be very skeptical about strictly relying on electromyography for anything.
That's not evidence for his belief.
I'm looking at the following video that is embedded on the neurosymptoms.org website and the thought that comes to mind is Transient Ischemic Attack. A mini-stroke that damages certain neurons may potentially lead to neurological impairment which, upon retraining (establishing new neural pathways) leads to full recovery.
I would like to add a caveat to this. CFS or ME that is sub-clinical, that is mild enough you cannot actually be diagnosed, might allow a fair bit of exercise. In patients with mild CFS or ME under weak definitions the same thing might apply. In patients with subclinical ME and complications that increase severity, such as EDS or OI, then there might be patients who can exercise.
This does not apply at all to moderate to very severe patients. Its only in the mild and subclinical range that this might apply.
It is also possible at a very mild range of severity that its very hard to figure out what the PEM response is, it might be greatly decreased. So it might be put down to a typical exercise response. We just do not know.
I realise this question is rhetorical, but for others I want to point out the traditional divide is structural versus functional. So non-functional is structural, unless you are a BPS psych perhaps.
Again a rhetorical question. The answer is yes.
You should be confused. These help eliminate disorders, or are used to support a specific diagnosis such as MG. If nothing is found then they tell you nothing about what is wrong.
When you are told this you are getting a non-answer.
One thing that convinced me that my symptoms weren't psychological was keeping a food/activity/symptom diary. I could go back and verify that something repeatedly triggered symptoms, even though I had no belief that they should have any effect. Likewise, things that I believed might affect symptoms didn't, or had opposite effects to what I believed they should be.
Doctors eager for a 'somatization disorder' diagnosis would blame it on a change in lifestyle (lost job, relationship, etc). I would then point out that there weren't any changes in my lifestyle; I just one day started having these symptoms. That didn't change their minds much though...
I’m due to see this neurologist again.....usual nhs follow-up.
Gimme some good comebacks to challenge this load of cobblers !
On page 10 you'll find a diagnostic algorithm for SEID. See if you fit the bill. If you do, considering printing (professionally!) and taking to your neurologist. Give him time to digest. Then, eventually, ask him why you don't fit the bill.
Just thought of a good answer to the opening question: science
You can also try a Google Site Search
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