"What makes a difference in chronic fatigue syndrome?": Commentary on PACE Trial mediators paper

[Sean]

This would also explain why patients are not more physically active after successful treatment of chronic fatigue syndrome: they do not necessarily have to move more, but their perception of effort and symptoms has to change.

"successful treatment" ???

I don't think that explanation explains what you think it explains.

 

[Dolphin]

HK receives royalties as a coauthor of a treatment protocol for cognitive behaviour therapy for chronic fatigue syndrome. JW declares no competing interests.

I wonder how such royalties work? Who pays them/when do they need to be paid? e.g. is it just if another research group uses them in a study? Also what level of money are we talking about would people think?

 

[Dolphin]

(In case anyone missed it)
The journalist, David Tuller DrPH, has today posted a substantial piece on the PACE Trial:

TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study
http://www.virology.ws/2015/10/21/trial-by-error-i/

There's an introduction and summary at the start if you don't want to take on the whole thing.

It's being discussed in this PR thread:
http://forums.phoenixrising.me/inde...he-pace-chronic-fatigue-syndrome-study.40664/

ME Network have also posted their own summary piece:
http://www.meaction.net/2015/10/21/david-tuller-tears-apart-pace-trial/