Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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What is your favorite probiotic

Discussion in 'General ME/CFS Discussion' started by place, Nov 21, 2017.

  1. happy

    happy

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    I am now able to eat anything I want :balloons::woot::balloons: (for the past 2 years I had to avoid wheat and most fruits and vegetables).

    I believe it's thanks to the probiotics (VSL3 + l.reuteri + l.rhamnosus). I've been taking them for a year with little improvement, but a few weeks ago I changed how I take them and - BAM, a whole new me :)

    Few weeks ago I started taking my probiotics first thing in the morning instead of after dinner. I read somewhere that bacteria survive better if taken 30min before food because apparently stomach acidity is lower when there's no food to digest.

    Also I started taking them with water that has been standing on the counter over night, so it could be that less bacteria were killed due to chlorine in water since it probably evaporated over night.

    And I have good energy! I don't know if this has anything to do with improved gut microbiome, but I feel OK, healthy, like I could start exercising if I wanted to. I will wait until after the holidays, though ;)
     
    pattismith, Rlman, Runner5 and 4 others like this.
  2. Murph

    Murph :)

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    I get benefit from something called Ultrabiotic 60. Its key ingredient is L.Rhamnosus, which is the bug in a very interesting experiement where they managed to cure children of peanut allergy. (that's a study worth googling!)
     
    pattismith, ChrisD and happy like this.
  3. place

    place Be Strong!

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    Ok going to add vsl (big money, I hope it is worth it) and the jarrow. Currently trying mutaflor at 2x a day with no change. I even overlap it a bit with the antibiotic bactrim
    My energy was amazing the second week on bactrim, but as soon as I got off bactrim, literally that next evening, my energy ceased.
     
  4. place

    place Be Strong!

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    @happy how’s it going? Still doing well?
     
  5. HowToEscape?

    HowToEscape? Senior Member

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    I wonder how much difference any probiotic can make compared to the amount and type of fiber in your system. From the little I understand the amount of desirable biota that form in your gut when the quantity quality of fiber is right is vastly greater than anything that can be taken by eating a probiotic.
    Probiotics also have to make it through your stomach so if they’re not formulated to do that they’re not doing anything. At least that’s how I understand it.
     
  6. happy

    happy

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    I can still eat pretty much anything, but energy has been lower for the last few days. I definitely don't feel like exercising now.
     
  7. RuthT

    RuthT

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    I found some benefit from making kefir & drinking daily. Can tolerate milk. Is cheap & easy & homegrown. Also find Fage yoghurt helps. Am trying rotating probiotics & noting responses. Also found some help from BIMMUNO which is OTC prebiotic.
     
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  8. Mary

    Mary Senior Member

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    Kefir from Trader Joe's or the grocery store worked wonders for my gut (after trying several different probiotics with no effect). I had had diarrhea for over 6 months straight, and the kefir cleared it up within a week. I now only have to drink it twice a week.
     
    Rlman, RuthT and Runner5 like this.
  9. TJ_in_UT

    TJ_in_UT

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    Dairy is a big no-no for anyone with gut integrity issues, so I won't use yogurt or kefir. However, I have benefited from PB8. I've heard lots of good about Garden of Life's Primal Defense. I only recently bought any because it's rather costly compared to others, but I've been impressed with the quality of all the Garden of Life supplements I've ever used, so I presume that this one is at the same standard. So far, I like it.
     
  10. pattismith

    pattismith Senior Member

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    I got big gut improvement with probiopure Bifidobacterium Longum so I don't use any other probiotic for months.:thumbsup:

    I think Naviaux (was it him or another searcher?) had done an advise to someone to take Bifidobacterium for it's anti-inflammatory ability. The second thing important for a probiotic is to be free of D Lactate which is true for all Bifidobacterium.
     
    BadBadBear and Nine lives like this.
  11. Webdog

    Webdog Senior Member

    Apothex Nasobiotex L. Sakei probiotic powder for chronic sinusitis.
     
  12. place

    place Be Strong!

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    @Webdog
    What changes have you seen? My sinuses were doing great as long as I used baby shampoo, drop of bleach and salt saline. Changing to no gluten and dairy was also key. But lately the infection has moved up into my forehead, where my neilmed won’t reach. It’s been causing some major sleep problems.
     
  13. perchance dreamer

    perchance dreamer Senior Member

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    Have you tried NeilMed's Sinugator? It works by pulsing the solution into your nose, so for me, it's much more effective than the bottle or neti pot. I think it can reach the upper sinuses, but how effectively, I don't know. Things do go sometimes wrong with the Sinugator, and I've had to replace some through the years, but it's worth the $27, I think.

    https://www.amazon.com/NeilMed-Sinu...UTF8&qid=1518045632&sr=1-1&keywords=sinugator

    The SinuPulse Elite is probably a better product although it's more expensive. I think it's what @Sushi uses. It's larger than the Sinugator, though, and less portable.

    https://www.amazon.com/SinuPulse-El... elite advanced nasal sinus irrigation system
     
  14. Sushi

    Sushi Moderation Resource Albuquerque

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    Yes, it is the one I am using now. Previously I went through a couple of Grossan Hydro Pulse Nasal/Sinus Irrigation Systems. The first one was great; the second broke in a few months. So far the SunuPulse Elits has given no problems in over a year.
     
  15. place

    place Be Strong!

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    Those pulse things make me laugh because 15 years ago I used a regular pulsing water pick. If only I could have patented it

    Thanks for the suggestions, I will try it.
     
    Sundancer likes this.
  16. Webdog

    Webdog Senior Member

    Bleach sounds scary. :eek: I'd rather try to restore the microbiome than remove it.

    The L. Sakei powder has eliminated about 60% of my chronic sinusitis (15 years), and has improved my sleep. There are some good Youtube videos about using similar L. Sakei products.

    Long term use isn't recommended, but you might try it for a month and see if it helps. Note that this particular brand only ships to the United States.

    https://apothexhealth.com/products/nasobiotex-l-sakei-powder
    https://www.amazon.com/Pure-Sakei-Probiotic-Powder-Billion/dp/B075D6CS5M/
     

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