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What is the TVAM (Transvascular Autonomic Modulation) Procedure?

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by Allyson, Feb 25, 2014.

  1. Allyson

    Allyson *****

    Australia, Melbourne
    What is the TVAM Procedure ?

    A Transvascular Autonomic Modulation . It's a procedure the balloons your jugular vein to help reinvigorate the ANS (autonomic nervous system) by improving communication between the organs and the brain. Helping with a lot of symptoms POTS people have. Some have reported to be free if symptoms after this procedure . Just wanted to know if anyone has had it done?

    B It is only thought to help with if you have specific underlying conditions. It is very new. It is also based on the same principals as the procedure the that was being done about ten years ago where people where having Vegas nerve stimulators put in. Patients flocked to it because it "completely cured" people. Only that after a year or two they all relapsed and almost all would up bed bound and 100% disabled. I think 100% of people did report ultimately being worse after. A large percentage of those who had the nerve cut died. I'll see if I can find the article. I know about it because my docs at the time wanted to send me for it. I was 19..... 2 years later the FDA stopped all the trials and basically black boxed the procedure.

    C There have been a number of statements against it by docs stating too many risks for little improvement. There were a number of clinics opened up during the CCSVI craze and those same clinics now need more patients after there were something like 40,000 self paid procedures in one or two years before organizations came out against it. Many MS patients seemed to get temporary relief but symptoms came back after a few months or a year.

    E My teen son had it & is doing very well. Has his life back. There are many others who are doing well 5 yrs after their TVAM. It is experimental for sure. But my son would be bedridden by this point if he had not had the treatment. There's no cutting of the Vegas nerve. It's very safe. Spoke with many drs around the country prior to having the TVAM. They said the procedure is safer than heart angioplasties that are performed by the thousands.

    F please research this thoroughly before deciding. The procedure is not endorsed by any of the big hats in dysautonomia research and it doesn't come without risks. Not to mention that no insurance covers it, FDA hasn't approved the procedure and whatever benefits are transient at best. Also, Dr Arata admitted that he has no explanation for how/why the procedure works for dysautonomia. And the most important aspect (I think) is the fact that there are so many causes for POTS that a one size fits all kind of treatment is just not realistic.

    G My son had a nervous system imbalance. It sounded very scary to us @ the beginning. It's not. . No medicine to cure or really help.

    G So the TVAM helped my son. Miracle to have found this procedure.

    maryb and Emootje like this.
  2. chilove

    chilove Senior Member

    It's very interesting. I'd definitely consider it if nothing else works.
  3. Emootje

    Emootje Senior Member

    The Netherlands
  4. knackers323

    knackers323 Senior Member

    Hi @Allyson what symptoms did it help your son with?
  5. MeSci

    MeSci ME/CFS since 1995; activity level 6

    Cornwall, UK
    It's vagus nerve, not Vegas! Also known as the vagal nerve.

    If one needs to dilate veins, increasing nitric oxide levels might be safer. There are a number of threads on this.
  6. ahimsa

    ahimsa Senior Member

    Oregon, USA
    @knackers323 - I think that story was from someone else, cut and pasted from another forum or web page, not Allyson's story. I think the "interesting" part at the bottom is the comment from Allyson.

    I'm not 100% sure but I don't think Allyson is a member any longer? (my guess from the **** under her name)

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